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Old 01-30-2013, 01:04 PM #501
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hi dominique,
i'm glad you found us.
my pet peeve is when drs say you're crazy or it's hormones or depression.
that's my cue to find another dr. imho.

i'm glad your's made the dx. i was on copaxone for 10yrs and did well with it.
you get used to the routine. i was glad to trade the daily shots for not having flu-like sx's with the interferons. shared solutions i found to be very helpful any time i called with Q's.

let us know how you're doing.
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And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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Old 02-11-2013, 01:53 PM #502
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I'm new to this forum. It seems like a great place to get good information and make new friends. I was dx about 12 yrs ago, but it sometimes seems everyday ia a learning process. I look forward to getting to chat with the members and gathering more information. I hope everyone has a nice and day.
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Old 02-11-2013, 02:49 PM #503
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Hi Dixiebell and welcome to NeuroTalk! Join right in any discussion that peaks your interest. This is a great place for good information or just to hang out and have fun.
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Old 02-11-2013, 06:12 PM #504
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hi dixie and welcome to NT,

hope to hear more about you.
i'm spms but am relatively stable and still drive.
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And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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Old 02-11-2013, 08:14 PM #505
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Welcome home DixieBelle..
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Old 02-13-2013, 08:30 PM #506
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Heart So nice to meet you

Great being able to network here with individuals like myself. I was diagnosed with MS in 2000, I took injections of betaseron then avonex for 9 years. So one day I go into see a new neurologist, he says I think your have an incorrect diagnosis. Sends me through tests again for the 8 hundredth times. Having done annual mri's for 9 years and multiple other tests. He then says we don't feel its MS. I felt blessed, a miracle, I asked to take me off the shots immediately. I was ok for about a year with few episodes, I contribute it to the elation of a miracle. After a year went by, one day I stood my legs buckled under me and move erratically had no control lost balance and fell hard. I was rushed to emergency and they ran all the same tests only this time they said , we are sorry, you do in fact have MS. This just shows you not all Drs are informed to MS. Thinking a neurolgist would but found out not all do unless they have a caseload of patients with MS. So instead of being hurt and mad about the miracle not being so, I embraced God even tighter, knowing I will need him even more now. Lesson I guess is to get other opinions besides just one, get several and do the tests.
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Old 02-14-2013, 02:16 PM #507
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Hi, my name is Lori, I'm a 49 yr. old female from NY.

I have been suffering with scoliosis & my aging spine. I said good bye to my pain mgmt. doctor this morning. Wonderful man, but he just could not help me. I think he tried every narcotic thinkable, but they all make me nauseous. I've also tried epidurals, nerve blockers, trigger point injections, etc. I just had an MRI done 2 wks. ago & am heading into NYC to a orthopaedic surgeon at the Hospital for Special Surgery. This is were I've come to. My pain is no longer bearable.
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Old 02-14-2013, 04:55 PM #508
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Hi Lori
you have posted on the intro thread of our Multiple Sclerosis forum and I am wondering if you may want to rather post on our Spinal Forum here http://neurotalk.psychcentral.com/forum22.html
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Old 02-14-2013, 09:11 PM #509
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Hi
My name is Rachael, I was dx'ed with MS in 2002 when I was 30. It,s been a rough road, but my husband, and son keep me going. I'm glad I found a place to chat with others above this monster of a disease!
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Old 02-18-2013, 02:54 PM #510
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hello freysgirl and welcome to NT,

i'm glad your family is supportive. we're a great bunch of people who can help with info and support.
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You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
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