[JENNIEO]

hey there - just joined this group today - I have RRMS, dxd in August of 2008, been on Copaxone since a week after that... holding my own, with stable MRIs and no loss of function. Main complaints are pain, brain fog and fatigue... but have an intense drive to figure out why I have this, how to keep others from experiencing it... yada yada. I troubleshoot system issues as a career and cannot help but try to do the same with MS. I've only read a few posts and already feel at home. Much to read - I may not reply right away til I get my bearings, and then you might not be able to shut me up!
Peace!
JENNIEO

[SallyC]

Welcome JenO, Nice to meet you. Glad you feel at home,
because that is where you landed.

Good to have you..

[shiftseattle]

Hi, I will be 28 next month, live in Seattle. I do not have MS, but I have lots of questions for you!

I am wondering if some kind people can share with me what kind of issues you had prior to diagnosis?

My doc is sending me to a Neurologist because she has no explanation for what is going on with me... she had mentioned to let her know if I had any symptoms like an "unsteady gait" that were related to MS as I had an MRI last summer with demylineation (spelling) found.

I went to her initially because one side of my face started getting numb and tensing up and it freaked me out. Then I started getting a weird tickling sensation on my nose that would not go away. The numbness comes and goes and I started getting this weird feeling up the side of my neck kind of painful but hard to explain. Not any kind of unsteadiness though.

I guess I'm just wondering what the heck could be wrong with me and hoping it is not MS because the thought of that freaks me out.

[SallyC]

Hi Seattle, welcome to NeuroTalk.

My MS started out with facial numbness and tingles,
many years ago, before ever being DXed or even
knowing that I had MS.

I'm not saying that you have probable MS, but
your ask your Neuro keep testing for it, as well as
other Neuro diseases.

I hope you don't have it either, but there are worse
things than MS! Please keep us informed and good luck..

[shiftseattle]

Originally Posted by SallyC

Hi Seattle, welcome to NeuroTalk.

My MS started out with facial numbness and tingles,
many years ago, before ever being DXed or even
knowing that I had MS.

I'm not saying that you have probable MS, but
your ask your Neuro keep testing for it, as well as
other Neuro diseases.

I hope you don't have it either, but there are worse
things than MS! Please keep us informed and good luck..

Thank you, I definitely will check back in. Appreciate your response!

[NurseNancy]

hi jennie and welcome,

i used C for 10 yrs and was, and am, stable also. i just stopped in Jan because my neuro said i could. i hope i don't regret it.

glad you found us. hope to hear more about you.

[NurseNancy]

dear shift,

i know how anxious the time is going thru the diagnostic process. dr visits, tests and waiting. try to take one day and one test at a time. not that it's easy but it helps.

my first sx's were a gait disturbance that was getting worse. it might not be MS at all. the dx is one of elimination. so the dr may order some tests to rule it out. IF it is MS it's not a death sentence. yes, some people are very ill. a lot of us are very functional. i've has my dx since '03. i'm still walking with a cane and drive.

try to take one day at a time. no one, including healthy people, know what the future holds. please let us know how you are doing in your quest to find answers.

[amp770]

Hi everyone! I'm Amy, I was diagnosed "by accident" a year and a half ago with RRMS. Had a few signs of it but nothing serious, just stuff I thought was my age catching up with me! Went on Copaxone right away and started having monthly relapses (sometimes twice a month!) Since then we switched insurance companies and I had to stop med for 3 months.....I feel great! Worried about going back on anything! I have A LOT of questions, some very personal in nature.....but I gotta know! And my doctor (supposed to be an MS specialist) doesn't seem to know the answers. A little frustrated, but taking it all in strides! : )

[amp770]

Love the icons available to use in our posts! : )

[SallyC]

Hi AMP, welcome home to the NeuroTalk MS forum.
Sorry we're so slow to answer. Sometimes we're all
here reading and wonder why noone's posting..LOL
.
I was on Copax for awhile and Avonex for awhile.
Had many attacks anyway, so stopped. Now, and
for the past 10 years, am on LDN Low Dose Naltrexone).

They're always coming up with new ones or revamped
old ones, so you have more choices for DMD Meds
now, but none of them work for everyone. The choice
is entirely yours, with guidance from your Doc.

Good wishes for you and please check in often.