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Old 07-06-2013, 06:13 PM #611
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Hi Novo.

There is a very long list of things to rule out. An MS specialist or other good neuro will do this. Two that I can think of quickly are B12 deficiency and Lyme Disease.

Best to you,
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Old 07-06-2013, 07:26 PM #612
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Hello,
I hope you have found some comfort in what Sally has said. She is right, it is going to be ok. I was just diagnosed in December of 2012. I can relate to some of the strange symptoms that you have mentioned. I also have had the strange hip pain and tightness. Same thing, tried to stretch but didn't help, I run practice yoga and cycle so it was frustrating that it didn't go away!

See a neurologist. It will get you answers and back on track. Hang in there! You can do it!
Kristin
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Old 07-16-2013, 05:40 PM #613
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Default Oh my, a new place to get used to

I'm lost, I'm confused... please forgive me, I have MS. I need to sit down a bit and get my bearings.

I saw some familiar names on my way in here, I hope I have found the right place. If I'm in the wrong place, please redirect me.

I'm Jendie aka Wendy.
I was dx with RRMS in 1998 at the age of 29, after 14+ years of strange sx. By the time I had an MRI, I had a heavy disease burden, with lesions scattered throughout my brain, brain stem and so on. My most recent MRI also showed lesions in my neck and lower. I have not had a full spine MRI. Probably because after a while my legs start twitching and I can't control them.

I am still mobile, I walk with the aid of a walker since I have this habit of tripping over a cane. I can walk unaided for about 30 feet on a flat surface.

I first joined the original MGH site after I was dx. Since then I've been a member of many other MS support websites and still am, but it's nice to check in with old friends from time to time.


Jendie
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Old 07-16-2013, 06:20 PM #614
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Welcome, you found a good support site.
So far it's the only one I belong to.
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Old 07-16-2013, 06:28 PM #615
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Hello jendie and welcome to NeuroTalk.

I seem to remember a smiley avatar that went with your username. If I have that wrong then I have no clue
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Old 07-16-2013, 07:25 PM #616
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Hello Jendie,

Welcome to our community. The MS journey certainly can be a confusing one if nothing else. Hope that you find our supportive discussions helpful.

With love, Erika
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Old 07-16-2013, 07:34 PM #617
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Welcome home Jendie.
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~If The World Didn't Suck, We Would All Fall Off~
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Old 07-16-2013, 08:07 PM #618
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Thanks, Snoopy, My3Sons, Erika, and Sally!

Snoopy~ I'm not sure which smiley avatar I had, forgive me I have MS, *giggle* as if that is my total excuse, but if it never made it to my long term memory, it's gone. I do remember using different smileys.

Sally~ Thanks!
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Old 07-19-2013, 03:54 PM #619
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hi wendy and welcome to NT,

are you taking anything for your MS?
what does your neuro say?

glad you found us.
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Old 07-25-2013, 06:59 PM #620
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Question Do I have MS

I have been diagnosed with more illnesses than I can count. I have been just referred to a Neurologist for what a new doctor (actually my Cervical Spine Surgeon), believe are signs of MS he has seen, and also a great deal of shaking around my head occurred during MRI.

I was told I had Parkinson's Disease, then told I didn't, then told I had Fever of Unknown Origin, and doctor told me it was related to my Rheumatoid Arthritis. However the second opinion at a renewed hospital said I don't have RA.

The cervical spine surgeon said none of my neck/shoulder/upper back/arm, and severe hand pain are related to my cervical spine.

Any help, advice or comforting words would help. I have been chronically ill most of my ill, but mostly the past 10 years, more and more strange diagnosis, such as Narcolepsy, Tardive Dyskinesia, low thyroid, etc.
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