[Snoopy]

Hello Blossom25 and welcome to NeuroTalk

Originally Posted by Blossom25

Does anyone have any suggestion on how they made their eye sight better???

The only thing that can be tried is IV Steroids. High dose steroids are used to treat relapses (exacerbation, attack, flare-up) other than steroids the only thing is time, time to see if his vision will improve after awhile.

[CNBarrett]

Hello. I am a 34 yr old single, disabled mother of a thirteen year old daughter and I have multiple neurological conditions. Pseudo tumor cerebri being the most of my concern. I have had multiple vp shunt failures and I am certain that this one has also failed. But this time I have additional symptoms that I've never experienced before. Including changes in mental awareness and psychological as well as intellectual issues. My neurosurgeon doesn't seem to be concerned with this. She is a great surgeon and has replaced for vp shunts already. However, the last time I had developed a staph infection on my brain and I nearly died before finally storming into her office and demanded that she doesn't something to help me. Apparently she has simply stretched herself way to thin by opening more offices than she can manage. I am hesitant to go to another neurosurgeon due to a horrible experience in the beginning with a quack who put a lumbar shunt in and ultimately another surgeon found that he had placed an old, outdated & recalled shunt model and he didn't put in a control valve to boot. By the time I had found another surgeon willing to do an exploratory surgery he found that my pressures were so high that he couldn't understand how I walked into the hospital on my own without having an aneurysm or stroke. According to my current neurosurgeon, any operation on my brain has triple the risks due to the original lumbar shunt draining too much fluid for an extended period of time has caused my ventricles to become abnormally narrow and it caused my brain and skull to partially detach. Any suggestions as to what my next step should be?

[Erika]

Welcome to our community CD.

Sorry that you are dealing with this and sorry I have no advice for you other than perhaps getting more than one opinion before going ahead with any more surgeries.

Hope that you find a skilled and compassionate neuro to help you.

With love, Erika

[kkm96]

Hello All,
I was diagnosed in oct. 2011. I was crushed as I watched my mom go through the disease and did not want to be like her in many ways. I have gone thru being optimistic to having enough. It is not like me to give up but it is getting harder everyday.

Originally I was in a double blind study of Ocrelizumab/Rebif, but had to stop the study after 8 months off and on. We were pretty sure I was getting Rebif because of the side effects I was having and eventually had to stop because my liver enzymes went thru the roof when the drug was reintroduced even at the lower dosage. Initially after I took copaxone, but it mentally did not work well for me. The study injections 3x's a week were bad enough but the daily doses of copaxone consumed me all day every day. So I stopped.

Recently I found another neurologist closer to home to get back to taking care of me(the original doc was 45 minutes away and in the same practice of my mom's now retired doctor. I liked him but it was so hard to do being so far) The new doctor which I saw only once so far seems good. He realizes I am tired of being a guinea pig and just want something that will help.

I am thinking of trying Tecfidera. My problem is the daily fatigue and muscle aches, numbness and pains. The doctors prescribed Neurontin and I take 500mg of naproxen several times a day, but it barely helps. Does anyone have any suggestions. I own a business with my husband and need to have my wits and mind in tact but the pain distracts me. I have a hard time with daily functions such as food shopping. My teenage daughters do help but a trip to the store with them will put me out of commission the following day for example.

I'm not expecting miracles but I can't take it anymore, life stinks. I commend you all for your positive attitudes and struggles, I just can't figure out how to get there

[SallyC]

HI KKM, nice to meet you. . Welcome to NeuroTalk and to the
MS forum. Come on in and join us. We are here for each other.

[confusedchicca]

Hello all.

I'm a 29< year old lady from the UK.

DX with tm years ago based on spinal cord MRI, had one a couple of years later ('no big changes'), but haven't had one for some time.

My question is this.. can TM recur in a different area of CNS? As I now have hand tremors and neck and eye pain.

[Erika]

Hi CC,

Welcome to our community.
Sure hope that you get some concrete answers from your doctor/neuro.
In the mean time, I've posted a response in your Tm/ms thread.

With love, Erika

[Cessairskye]

Just trying to muddle through tons of tests and doctors visits and thought some like minded folks would be good!

[Erika]

Hello Cess,and welcome.

Oh, we're a great bunch to hang with while you go through this. Please feel free to share what's going on. We're here to support each other.

Most often others here will have gone through similar stuff as some one else and for sure the tons of tests and doctor visits are a commonly shared experience. Have you been diagnosed with MS or is that what's going on now?

With love, Erika

[SallyC]

Welcome Cess, nice to meet you. Make yourself comfy.