[LindaTN]

Hello. I don't know if this site is new from previous site run by Mass General which I used to use all the time. I know I got email from them saying that they were moving. Not sure.
I am 64 , retired RN who is caring for my hubby of 44 years who has MS. He has had MS since he was 21 yrs old ( now almost 68 , so MS for 47 yrs. He is bedfast, has fair upper body strength. He has very bad short term memory and now even long term memory affected. He talks very little and is tired out most of the time. He has had to quit driving and have help with care since he was in his 30's. He has been on disability 30 years. Our life has not been easy but I can always find someone else worse off. At least I had the time to finish my education and use it for his care and also work as long as I could myself before getting sick myself with Intersticial Cysitis , PAD and Osteoarthritis and having to retire in 2000. Complicating Gary's case is that he also has Crohn's Disease, diabetes, and has a supra pubic catheter which has been a problem blocking up. I may not be on frequently as I am kept busy and sometimes just too tired to do anything but rest when i can, but I hope I can check in and get advice and give some myself.

[SallyC]

Welcome, Linda, so glad you could join us. MS is a nasty disease and can really be hard on the caregivers. Bless you for being there for him.

I hope you will come here often to chat. We are here for you and Gary.