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Old 11-05-2011, 05:40 AM #141
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Hello Sandra and welcome to NeuroTalk from another Aussie. Please know that it's quite normal to have all those feelings you've been experiencing, most of us have been through the same ones.

I hear you about the Copaxone. I don't take any of the DMDs (disease modifying drugs) and I've been diagnosed for 34 years. If you are not happy to start medications straight away, then don't start. Tell your Neuro that you need more time to decide.

We have a very active MS Forum here with lots of wonderful caring people who have MS, or have symptoms similar to those of MS, and we're all here to lend you the support that you need. Please ask us anything you want and one of us will try to answer for you. If you want to vent, then we'll listen, if you want to cry, we'll comfort you and if you have funny to say,we'll laugh along with you.

Feel free to post about any of your concerns down under here in the main forum, and if you have something off topic you'd like to talk about, then come join us in the Stumble Inn.
Here's the link : http://neurotalk.psychcentral.com/forum102.html

I'm sorry that you have MS, but I'm ever so pleased that you found us here.
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Old 11-05-2011, 07:38 AM #142
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Hi Sandra and welcome to the board!
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Old 11-05-2011, 12:17 PM #143
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Hi Sandra, nice to meet you..

Oh boy do I understand the anxiety, depression and the cry at everything side effects of MS. I'm on Prozac, but I recommend Buspar to start...it's better for the anxiety at first. I love Prozac now, but it's a bit of a toe tapper at first. Talk to your Doc about it.

Stay with us, we're family who understand.
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Old 11-07-2011, 03:43 PM #144
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Thank you so much for welcoming me! I think I'll tell the MS nurse my fears and tell her I might wait till I see my Neuro in 4 weeks.
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Old 11-17-2011, 10:54 AM #145
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Hello. I don't know if this site is new from previous site run by Mass General which I used to use all the time. I know I got email from them saying that they were moving. Not sure.
I am 64 , retired RN who is caring for my hubby of 44 years who has MS. He has had MS since he was 21 yrs old ( now almost 68 , so MS for 47 yrs. He is bedfast, has fair upper body strength. He has very bad short term memory and now even long term memory affected. He talks very little and is tired out most of the time. He has had to quit driving and have help with care since he was in his 30's. He has been on disability 30 years. Our life has not been easy but I can always find someone else worse off. At least I had the time to finish my education and use it for his care and also work as long as I could myself before getting sick myself with Intersticial Cysitis , PAD and Osteoarthritis and having to retire in 2000. Complicating Gary's case is that he also has Crohn's Disease, diabetes, and has a supra pubic catheter which has been a problem blocking up. I may not be on frequently as I am kept busy and sometimes just too tired to do anything but rest when i can, but I hope I can check in and get advice and give some myself.
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Old 11-17-2011, 11:31 AM #146
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Welcome, Linda, so glad you could join us. MS is a nasty disease and can really be hard on the caregivers. Bless you for being there for him.

I hope you will come here often to chat. We are here for you and Gary.
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Old 11-24-2011, 11:40 AM #147
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Hi my name is Kathy and I am new to this site, not sure how it works. I am lookinf for answers about MS.
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Old 11-24-2011, 12:41 PM #148
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Hi Kathy and welcome to NT. It'll be pretty quiet here for the next few days but it's generally a pretty busy site. I hope you'll keep coming back. Reading and posting makes things seem not so bad. It's good to know there's someone else who understands.
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Old 11-24-2011, 07:11 PM #149
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Hello Kathy and welcome to NeuroTalk
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Old 11-25-2011, 05:28 PM #150
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My name is Kathy, I need to see why this is so hard to get answers, about MS from our doctors?
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