[MClive]

Hi all, I'm Mandy.

I'm new to the forum, and glad to be here! As mentioned in my recent post, I have been diagnosed, undiagnosed, and rediagnosed with MS several times in the past four months (isn't that too short a time for such drama?!). I walked through diagnostic hell, spent some time accepting and learning about MS, and then I was thrown back into diagnostic hell. If my symptoms were mild, the waiting would be easier to accept. If I could find a neurologist who was nice, that would also help.

I decided it was time to jump online and see if my story sounded familiar to anyone, or if anyone had any insights or suggestions.

Looking forward to being in touch!

Thanks,

Mandy

[ShelbyG]

Hi. My name is Shelby. I have had RSD/CRPS for 8 years now and in the last two days of my spinal stimulator, which for me has worked wonders. For the first time in a long time, I was able to hold a pen in my hand, which doesn't seem like much, but for me, it was like lifting a 50 pound weight.

I saw a post earlier about someone talking about their trial and how the pain came back almost immediately? Is that typically the case? I was told it will be 2-3 weeks before my permanent implant surgery and I cannot imagine going back to that unbearable pain again.

Any other thoughts, suggestions, insights would be greatly appreciated from everyone. I was only informed of the spinal stimulator a month ago after enduring excruiating pain for 8 years with temporary relief from stellate ganglion blocks and radiofrequency ablations, on top of countless meds.

Thank you!
Shelby

[SallyC]

HI Mandy and Shelby. Welcome To NeuroTalk..

Come on in and sit awhile..

[chefaid90]

My name is Lisa I am 39yrs old. I have been dealing with problems for the last 7 to 9 yrs. I havent had any doctor take me seriously until my pcp is finally slowly doing stuff to help me. My neuro that I have seen twice now is ok dont think she really listens to me though.

[SallyC]

Hi Lisa, Welcome!!!

What tests have you had towards a diagnosis?

Is your Doc thinking MS?

Come on in and join us..

[Kitty]

Hi Mandy, Shelby and Lisa! Welcome to NeuroTalk.
I hope you find the answers you're looking for. NT has a large MS community and I'm sure you'll all find helpful information here.

[chefaid90]

I have had blood tests, emg, mri (on a 1.5t machine). My pcp believes MS but my neuro is trying to tell me its all b12 symptoms even though my b12 is in normal range

[new2net98]

and now tells me that a "second" opinion with an MS & Chiari specialist is in order. We'll have to wait until after winter's grip is gone as I can't take the car travel.

HI, I'm Stacy...and I suffer from memory loss, tingling, speech problems, balance problems & an assortment of "weird" symptoms, too many to list.

Before this...I was semi-strange anyway. Keeping this as brief as possible...headaches at age 11 (pre-MRI 1977). No dx then just take her home from Yale Hospital, with a pat on my head.

Living everyday with the hope that I make it through with a smile!

[SallyC]

Hi NTN, nice to meet you and welcome to the club..

[candacehp143]

ok here is my story can you tell me if this is MS possibly cus im going crazy:
Three years ago i woke up with weird tingling lips, throughout the day it got worse and my entire bottom half of my face went completly numb and my mouth drooped like i was having a stroke, rushed to the ER they thought i was having a TIA turns out i wasnt. started seeing a dr who ruled out lupus, lymes, RA, fibromyalgia, and alot of other things. sent me for and brain MRI which he said looked ok. since then ive had 3 more big episodes and each time, it scared the heck out of me! i get a lot of sypmtoms as well which are
MAJOR dizziness
lightheaded
numbness/tingling of hands, feet, legs and arms,
a feeling like something is crawling on me
MASSIVE fatigue
sensative to heat
hives
feeling like my head is to heavy for my neck (like a bobble head kinda)
the tingling of my lips still
muscle twitches/spasm all over!
back pain
shocking pains in mainly my arms and hands, like i stuck my finger in a light socket
problems with my vision, mainly just blurred vision,
constant headaches
MAJOR memory issues and cloudy head on top of clumsiness
bladder issues
and im sure there is more that i am leaving out
Its affecting my everyday life, i have no energy, i dont know how much longer i can go with feeling like this on a daily basis. ive had 3 drs tell me it sounds like MS i go in today for a MRI of c spine and lumbar spine. but i dont see a nuero till the first. today i feel like im having an episode my mouth is going numb again.; all i wanna do is try to sleep it off but then ill go again without really spending time with my kids. does any of this sound like MS to any of you.
forgot to mention that my vitamin d level was at a 4!!! and that was with taking 1000 IU a day. and the trembling as well,
i was in the er two weeks ago, cus it felt like i was having a heart attack, my upper chest and lower throat felt like it was closing in, got really really tight i read that that might be what is called and MS HUG? i only get it in my upper chest and also in my throat, or front of my neck