[Snoopy]

Hello redbull5604 and welcome to NeuroTalk.

Originally Posted by redbull5604

I am new to the site and frustrated. I am having all the symptoms of MS but no active leisions to diagnose.

There are no symptoms which are unique to MS.

All of the MS symptoms you may have read/heard about can be caused by many conditions/illnesses/diseases.

Hopefully you are working with a Doctor who is ruling out other causes for your symptoms.

Take care...

[richarddsmith]

My name is Rick Smith, and I'm a new member (11/8/13). I broke everything in a car wreck in 1988. I've had 2 Boston Scientific SCS units for about 6 years, and NEVER turn them off, or down. One is lower back and one is neck. Now, because of spinal degeneration, they want to do traction to try and help the pain. I have already had one electrode break about six months after implant, but they worked around it (sort of). I just emailed Boston Scientific for an OK, and I haven't heard back yet. I'm afraid the electrodes will either break of disloge under traction. Has anyone got experience with this?"

[Nikki88]

Hi Everyone! I am a new member and I wanted to introduce myself. My name is Nikki, and I am 25 years old. I am new to this whole online forum thing, so please bare with me.
I have been dealing with my "issues" for almost 2 years now. I am still un-diagnosed, but my doctors keep coming back to the MS diagnoses. I just had my 3rd MRI done in the past 2 years. (Haven't received the results yet) This is supposed to be a stronger more detailed MRI then the first two and they are hoping that they will see something other two missed. We have been on the long road to figuring out what is causing my symptoms. I have been tested for Lupus, vitamin deficiencies, Lyme disease, Sjogrens, strokes, and i am sure more things that i just don't remember right now.
I know that the answer will come at some point, and the key is to be patient. But that, at times, is easier said than done. I understand that it is important to find the right cause so you get the right treatment. I don't want to be treated for something i don't have. I have read that MS, could be difficult to diagnose. And at times it can take a while before they can give a positive diagnosis. Sometimes my feelings are so mixed, about the possibility of a diagnosis. The prospect of living with something like this for the rest of my life scares me, but the idea of having an answer almost gives me a sense of relief. Is this normal, or am i just crazy??
Reading your posts have been great. It is great to know that i am not the only one having these problems. And that there are others out there with whom I can relate to. My family and fiance are super supportive and helpful, but it is nice to know other people out there understand what i a going through. So the long and the short of it is, Hi! and i am happy that i have found you guys.

[SallyC]

Welcome Nikki. We are happy to have you.
I'll be saying a prayer that your MRI proves a DX, this time.
I hope it isn't MS, but there are worse things.

Please do stay and join our little club, that none of us ever
wanted to be a member of.

[Erika]

"The prospect of living with something like this for the rest of my life scares me, but the idea of having an answer almost gives me a sense of relief. Is this normal, or am i just crazy??"

Hi Nikki and welcome to our community.

Many people who go through the diagnostic process and all of the time and patience that takes, have said that once that they were diagnosed, it was a relief (of sorts)...so yes, this is normal and no, you are not crazy to think this way.

I hope that you get some answers one way or another.

With love, Erika

[punjabpete]

Hi everyone.
I am a 45 year old man. I was diagnosed with hemangiomas in the vertebrae of my spine in 2008 and in 2009 I was diagnosed with MS after my immune system took a dislike to me. I am looking for answers as I am not convinced I actually do have MS.

[SallyC]

Welcome Pete. Nice to meet you. So sorry as to why you're here, but
happy to have you join us. What answers are you looking for. We
are not Docs, but may be able to answer some of the easy ones.

Thank you for joining us.

[Punkin11]

Originally Posted by SallyC

Welcome to NeuroTalk Ally, nice tp meet you.. Have you been diagnosed with MS?

I hope you get all the answers and proper treatment you need from the UBC Clinic.

Stay with us and let us know how it goes.

my sister has been diagnosed with MS and has been in treatment for over ten years. She fell four weeks ago and broke her cubic bone across the top of her foot. It doesn't seem to be healing at all, do we need to see an orthopedic with MS experience?

[SallyC]

Hi Punkin, sorry about your sister.

I would deffinately see an Ortho. I don't know if an MS specialist is Let

us know how she gets along.

[ker0pi]

Hello,

My name is Michelle I just turned 36 years old and after 6 years of constant pain and slowly worsening disabilities I was diagnosed Dec 2nd with MS. I should have been dx last December but the Radiologist who read my MRI said it was clear. The neurologist I saw Dec 2nd dx with the very same MRI. I had 9 lesions on that scan and am a bit afraid of what the follow up MRIs will show. I had brief relief getting dx but now I find myself in a crashing depression. Every morning I wake up and think, this is the rest of my life. Walking with a cane, soon to be crutches and having difficulty doing absolutely everything. There is nothing I do that I do not struggle with. I am exhausted all the time and have no stamina. I still do physical therapy at home 6x a week but everything seems to get a little bit harder. 1 year ago when I had my first MRI I walked without assistance aids and could manage 25 minutes at 2.4 mph on the treadmill. Now I have days where 4-8 minutes at 2.0-2.2 mph makes me want to give up all together. I have a 7 year old son whom I have never been able to run and play with. This all started when he was just 18 months old. Reflecting back I can remember symptoms and episodes as early as about age 9 and many through my teenage years but I always recovered after a day or two. At this point I'm just scared to death about what the future will bring. I've started Ampyra and my doc wants me to start Tysabri after my blood test and follow up LP and MRI. There is much, much more to my story as I'm sure there is to everyone's. But for now, that's me.