[jtsal212]

Hi I am Sharon

I am currently undiagnosed as MS, therefore Im not sure if Im welcome here. I am looking for help. For I have many of the Symptoms. I was very sick 2 years, ago bad infection, and severe pneumonia. I am in my late40s. however have had many problems overall with my back and had multiple back surgeries and I have metal in my back, (No MRI can be performed) My SED rate has been on the rise in the last 10 years each year higher than the previous, I have some nerve damage and have chronic pain. Lyrica has saved me from excruciating pain in my leg where the nerve damage is, so overall up until 2 years ago which is unrelated to pain or anything else, I just developed a terrible paroid gland infection and one of the worse cases of pneumonia that the doctors themselves told me later did not expect me to make. They were new doctors becuse my personal doctors did not use this Hospital since I live 1 hour 15 away from the. Initially they thought the SED rate was from the infection, but I told them NO that overall I have had a High SED rate which keeps climbing over the years. 10 years ago it was 65, currently it is 103. I have regular pain that has nothing to do with my chronic back pain. Aching, suffering, unable to function until I have medicine in me each day. I never know what each day will bring. I have been tested for any and everything other than MS. During the time was ill in 2010 it was discovered I had 2 measurable nodules in my one lung and a possible granulous??9not sure on spelling. The pulmonoligist said they were not cancer he could tell and even to get a biopsy it would be impossible to get to them but wanted to follow up with CTs every 3 mos then every 6mos still. They also discovered and Andrenal Gland tumor and kind of are like ??? up in the air as to what to do about that. My infectious disease spec. wanted and wants a PET Scan ordered but the Pulmonolist has to order it and he wont. My eyes (I never wore glasses) have gone from perfect to needing reading glasses, no biggie right?? thats the norm with getting older, but the difference is in one day I can go from using 1.5, strength. to 4.00 and not needing any all in the same day, and can read print as small as bible print and then on others days/weeks I cannot. My eyes need eye drops about 10 times a day. I have numbness in my feet and leg everyday. Sometimes I can step on small piece of glass and not know it until I see blood all over. This has not been a one time thing it has occurred several times. I cannot overdo it or I pay a heavy price for it and am not functional. I am at my wits end as far as a diagnosis and I know the High SED rate of 103 is not good. I have kind of become lost in the shuffle and I know this forum is not for diagnosis but u may be able to give me non-professorial advice if possible. Im so disgusted and dont know what to do. I was never sick or in the hospital my entire life up until 2 years ago when i was in 4 times.....lots more but that is the highlights, does anyone have any thoughts for me, it would be greatly appreciated..................thank you