[SallyC]

Mary sue, I think I already welcomed you once, but welcome again.. I like you already, you're one year older than I am.

I think you have a good chance of having MS. Keep us up to date as your Doc possibly diagnoses you.

[NurseNancy]

dear nowakes,

your findings both clinical and otherwise would seem to suggest MS.
can you get a 2nd opinion? that might put your mind at ease. once you can get a dx you might be able to start a tx.

don't rush into anything you're not ready for. make the dr explain to you why
he wants the mri's again this soon? maybe the films were hard to read, or weren't done right? in which case you shouldn't pay again.

my advice would be to start to keep a medical file on yourself. that means
getting copies of your mri's on a disc and getting copies from your dr of your test/lab results. if and when you see other drs it will be helpful to show them the files.

the reason i feel strongly about giving this advice is that as i was building my
case for a try at SSDI, which took 18mos, i was finally denied and told they hadn't received some vital info etc. well, my dr said it had been sent. ever since then i've kept my own records. i had to hire an attorney and won my appeal. but what a costly and stressful journey that was.

now, I'M NOT saying you will need disability. i'm only giving a good example to keep your own records.

[NurseNancy]

hi mary sue,

i'm so sorry about your dx and your daughter's.
i was dx'd at 53 and that was considered late by my neuro.

if you need help with resources you can call your local MS society at 1-800-FIGHT MS.

please let us know how you are.