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#1 | |||
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Elder
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I always thought "the Hug" involved the diaphragm...
![]() I've had a spot on my left low ribcage in the back for over 6 years that my former pcp thought was a kidney problem...nope; tests were negative. It is sore to the touch, and feels as if I have a golf ball there. I think it's the muscles being permanently tight. As to the abdominal issues, I know for sure that MS can make things sluggish (even tho my neuro disagrees with me); I have issues with it all of the time. I am beginning to believe there's only so much the docs and drugs can do to help us with our various issues. All we can do is eat right, get enough sleep and move our bodies. And pray ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#2 | |||
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Wise Elder
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Kelly - That does make sense. I do have numb spots but they have gotten better since the flare. I couldn't feel water hitting the areas while in the shower and anything touching those spots would feel weird. I only take gabapentin for the pain. But it doesn't seem to be doing a good job lately as I am having a lot of breakthrough pain. And upping the does of it is not an option as I react horribly to the increase. I am only on a small dose, 900 mg a day. Heat and ice helps and I made my own magnesium cream and that helps as well. Plus, the magnesium cream absorbs in to my system and bypasses the digestive system so don't have those side effects.
Debbie - A golf ball is a good way to describe it. I feel that too sometimes in my lower rib area. I too was tested for kidney problems back in January when I went to the ER for severe tremors. All tests showed up negative. I've had ultrasounds in that area and nothing showed up. I additionally had an ultrasound of my kidney's, bladder, etc., all of which were negative. There is just nothing there in that area, meaning, internal organs. And all testing has been negative. But still, I feel that same ball feeling. I also feel that in my left hamstring all the time and when my butt goes in to spasm - it's like sitting on a golf ball. Thanks for sharing your experience. Sometimes when the pain gets so bad I start thinking the worst. ![]() |
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#3 | |||
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Wise Elder
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BTW - As you know, I have been getting regular massages. My massage therapist does a gentle 1/2 hour massage. It took a month for some of the swelling to go down and the muscles to relax. She said the intercostals are still really tight but she doesn't want to do too deep of a massage - we tried that once and never again.
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#4 | |||
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Senior Member
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I have a hug very similar to you Trish. I still take a little Baclofen for the tightness. Not sure it works enough to spend the $.
I used to take gabapentin but it never really seemed to do anything for the pain. During the daytime, I just deal with all my sx's. By evening, the hug is strong and the pain has increased. I am experimenting with MMJ. Smoking will give the quickest results but my lungs can't handle it. I tried a vaporizer but even though the effect was immediate, my lungs still knew there was a foreign element. Both came with a "high" that was unpleasant. I am now trying edibles in various doses/flavors of desserts. I actually like it in that it suits my sweet tooth and is not as strong as smoking. I will probably get a MMJ card soon. I have an appt with the neuro next week. He may or may not be on board with it but I am sure I will find a doctor to help with the paperwork. |
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#5 | |||
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Wise Elder
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Quote:
As for the MMJ, I wouldn't even know where to find a dispensary. I know they had an article in your paper about some healing center that wanted to offer MMJ. The landlord was NOT on board with it and that seems to be an issue throughout the state. A while back someone on here, I think it was Kay, mentioned putting it in butter and using it that way. I have been asked by a few people if I was going to get my card now that it is legal. I haven't decided on that one. I don't want to get an unpleasant high like what you experienced. I just want relief. Plus, as I lay here in bed almost flat on my back, I keep looking at my Ativan bottle and keep debating and asking myself . . ."Is it bad enough to take one?" I know it helps some but I just can't get myself to take them. I am so bad about that and would probably be the same way with MMJ. Baclofen really didn't help and it made me irritable and hungover and just feeling like carp! I tried it for a week at full dose and then the neuro had me take 1/2 tablet. Even the 1/2 did that to me and it really didn't help the hug much. As I mentioned in Dej's thread, valium worked great, I think. ![]() That is how I ended up with Ativan. ![]() |
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"Thanks for this!" says: | Debbie D (05-18-2011) |
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#6 | |||
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Elder
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Sandy makes cannabis butter and gives Jim cookies...it lasts longer in the system, I think...
your landlord wouldn't be able to object to cookies ![]() If you took it this way in the evening, it might calm down all of the sxs. I know it calms mine down, but the cannabis I inhale makes me feel awful...so I don't use it very often, only when the spasms are almost unbearable and I've maxed out on dosage of zanaflex. There are cookbooks for cannabis out there; I once saw one at Barnes and Noble... You're lucky that your state is compassionate enough to pass that bill; ours is still in the neandrathal phase...I feel that if we had dispensaries, I would be able to obtain the type of cannabis that would be appropriate for my symptoms, instead of buying it off the street with God only knows what's in it...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | tkrik (05-18-2011) |
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#7 | |||
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Senior Member
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Places are just getting up and running. My pharmacist friend just told me of two dispensaries.
I heard the same thing about the dispensary having problems locating in the medical building you are talking about. It is really a perfect place for it. A professional surrounding. Did you know Colorado has had MMJ for TEN years! I have tried pre made brownies and blondies. Both were good tasting. I also was given pre made butter that I put in a batch of chocolate gooey brownies. Tasted very good and it made me think it was an overdose waiting to happen. ![]() ![]() I am sure there is something going on in Tucson. The price of getting everything in order and the hassle the state has put on it makes it difficult but not impossible. Everything should be easier in the fall. But I think I am serious about going forward. Can't hurt like MS hurts! ![]() It is just a matter of dosing. The last two times though as the herb took effect, my feet stopped the intense pain and the hug was lessened. No spasms as I laid there. A general quietness in my body. Come morning, my body is a bit "loose" but it stiffens up pretty quick to start walking and do it all over again. |
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"Thanks for this!" says: | tkrik (05-18-2011) |
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