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#1 | |||
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Wisest Elder Ever
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For those not tested, the accepted amount is 2000IU D3 daily.
You buy the single D3 supplement...NOT cod liver oil with A in it. But say you test at 20... take 2000IU... in ideal situations you might raise to a level of 40. That would still be low for an MSer. If you do not go outside much...you won't test very much in D. There is one person on the NT boards who tested at 3. That is pretty scary. The MS recommendations are higher than for others. People like me are given 50 as a goal. My doctor wants me at 70. MS patients should get screened for B12 (low B12 mimics MS symptoms) and D. The data are clear on this.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: |
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#2 | |||
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Wisest Elder Ever
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Last month I tested at 55 for Vitamin D.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#3 | |||
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Elder
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I take B12 and my numbers got to within normal range...
I take D3 but my numbers were also normal, but I feel more won't hurt. I take Cranberry and Ester C to combat UTIs, but I still get one every three months like clockwork ![]() And I take Juice Plus, which is basically ground up food...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#4 | |||
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Magnate
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I take 1000 IU of D3 daily, my D level was 154 (should be > 75!) - this based on Canadian measurements (if they differ from the USA... I'm not sure what 'measurement' is used).
I've taken that much D3 for 3 years now, my doctor was very pleased with my overall results. I had a full work up done for vitamins, minerals, etc a couple months ago. Everyone's different, I was never shown to be deficient in any area, so it's definitely worth getting tested, so you aren't ingesting more pills etc unnecessarily.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#5 | |||
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Wisest Elder Ever
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Canadian is divided by 2.496= 61.70 US units. ng/ml
A good reading. http://www.unc.edu/~rowlett/units/sc...ical_data.html http://www.vitamindcouncil.org/news-...d-level-units/ Within the range of 50-80ng/ml US. I get alot of sun in summer. And take 5000IU D3 during the rest of the year, and tested at 43. I've increased to 10,000 IU every other day with 5,000 on the alternate days. Will get retested in Oct. Not everyone responds to oral D3 and not everyone can make D3 from the sun depending on age, or use of statin drugs etc. So testing is the only way to get a good idea of what is going on.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#6 | |||
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In Remembrance
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What brand and type of D3 do you use? There are so many diff. kinds and brands. Which have you all found the most effective for you?
Thanks ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#7 | |||
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Wisest Elder Ever
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I used to use NOW brand. I bought on iherb.com
But Puritan's Pride now carries it and I use that one. Very inexpensive when you take advantage of the buy one get two free sale they have once a year. It is going on right now. Typically it is in late spring and early summer. I get my B12 there now too, and my ribose. Sometimes other things depending. If you order once from them, they email you specials. Like free shipping for a short time. I just bought a bunch of B12 at 1/2 off that way. I tend to buy a few months ahead, and their exp dates are good, so you can do that economically. Vitamin D3 is very inexpensive and is often commonly in local stores too at not too inflated prices. But the best deals of course are on the net. I have found our local WalMart has excellent Supplement section with low prices and quality.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#8 | ||
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Member
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I take certain supplements which work to help symptoms, or almost eliminate some.
With 800-1000 mg of Magnesium, prescribed a quarter century ago by a neuro, I have no jerks or spasms in my back or lower legs. Without, I have these spasms and jerks all night. When I went to the ER for an intestinal block, they kept me overnight, and I was without magnesium. i jerked and spasmed all night. They had no source of magnesium. With 250 mg of non-flush niacin, I have eliminated the blind episodes I had. I used to get essentially blind for ten minutes (the first two times it was totally blind). I would recover after ten minutes but that wasn't fast enough for any doctor to observe it. Now I may have a non-pain migraine once in a while, but no blindness. A chemist told me it opens the vessels. I now have to be sure to take Calcium too for the leg jerks. I have taken that even before magnesium, but as I age I find I will get the jerks if I have forgotten the Calcium, even though I take the magnesium. I take the two separately. At one point I was having almost-jerks in my legs even with magnesium, and the chemist I know ( a friend) recommended 100 mg of B1. With this, I didn't even have the almost-jerks. As I age, will there be more things I need to stop it? In my first bout of a-fib, five years ago, I was found to have low potassium. Taking 20 MEQ with my low dose propanalol mostly regulates that. Even in the hospital with my first bout of a-fib, which lasted hours until they got the potassium report back, I normalized soon after the potassium and did not have to be cardio-converted. I take Lutein Eyes for eyes to avoid macular degeneration, which both parents had when they were 15 and 10 years younger than I am now. I do not have it. My D3 level went up when I took D, but I have no proof that it helped anything. I was very low at 15. It went up to 85% of normal, whatever that is (the doctor just gave me the percentage). I avoid as much sun as possible due to having Porphyria. My sun avoidance didn't help my skin cancer until recently--no cancers now for 3 years. I used to have two a year--but I don't know if that could be related to having more D3, if D3 helps the skin? I only take 600-800 mg of D3 per day, fearing I might stir the Porphyria, because it reacts to hormones, and D is a hormone. I used to have ridged nails, but since taking a gelatine product, only one tsp a day, that has gone away and nails do not break. I take a few more things, like a low dose Multiple Vitamin without Iron, but I don't have any proof that this does any good. The others have all been demonstrated to bring improvement. |
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"Thanks for this!" says: | SallyC (06-01-2011) |
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#9 | |||
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Wisest Elder Ever
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In the US the lab ranges show 30 at "normal".... 85% of 30 is 25.
I think it would be helpful for you to get the number result, from your doctor's office, so you can know for sure where you are. When Vit D is low-- calcium/magnesium balance gets out of whack. The new research shows that normal range should be 50-80ng/ml. Most of the lab ranges reported for B12 and Vit D have not been adjusted to reflect the new data. Also, the rise in skin cancer that is so disturbing today, is slowly being examined and is thought to be a lack of Vit D at the root of it all. Vit D seems to be a scavenger for cancer cells. Having good levels, seems to prevent other cancers too, in the studies coming out.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#10 | ||
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Member
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Mrs. D, I will ask for retesting on my Vitamin D level. I have not had a test for several years. With D being a hormone, isn't there the possibility of overdose?
I surely need more magnesium than is normal. Perhaps it is the D problem. |
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"Thanks for this!" says: | SallyC (06-01-2011) |
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