advertisement
Reply
 
Thread Tools Display Modes
Old 05-30-2011, 12:08 AM #1
Alaskan's Avatar
Alaskan Alaskan is offline
Junior Member
 
Join Date: May 2011
Posts: 7
10 yr Member
Alaskan Alaskan is offline
Junior Member
Alaskan's Avatar
 
Join Date: May 2011
Posts: 7
10 yr Member
Default The "screw driver" stab is back! grrrrrrrr

It's been a week straight with pain in some sort of body part this week, grrrrrrrr.

Just need a little rant, tonight! Don't mind me, I'm sure it's been chatted up before.

Today is the swollen wrist with red patch and pain all day, about an hour ago the left shoulder decided to come out and play, again, as usual! Feel's like a crew driver shoved in there, ache, ache, ache, STAB! ache, ache, STAB! ... I've read so much in the last 24hrs here on this site and I am just humbled by all the people going through this sorta pain. It may not be MS, but crap, pain is PAIN! And it sux!

I hope I am not crossing the line with this next detail, but to me it's medical and was very scary.

This morning I woke up and was feeling pretty good pain wise, sun was shining and my mood/attitude was just great! Well, the fiance and I got a little frisky, and upon me reaching "the end", my heart started to race (more then normal), I got stabbing pain in both tempals, my vision went blurry (saw star's/glitter) and dang near blacked out! I had to grab the wall to hold my self up, fiance said, WTF! You lost all your color in the face, and I hit the floor. Took about 1/2hr to regain myself and my fiance was very scared.

AGAIN, NOT trying to be to personal here, just need to know if anyone with MS has had this happen? I HAVE NEVER HAD THIS HAPPEN TO ME, scared the crap outta me!

And if you have any secrete's on pain managment, please, do tell! I hate pill's/meds of any kind. On Lyrica at the momment (last 3 days) has done nothing at all, except my tongue feels a little swollen, one of the side effect's. If it doesn't chill out tomorrow I'll stop taking it.

Thanks for letting me vent, feel like I can't do that yet.
Alaskan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (05-30-2011), Lady (05-31-2011), SallyC (05-30-2011)

advertisement
Old 05-30-2011, 07:16 AM #2
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Unhappy

Man, way to kill the mood (I'm trying to be sarcastic here)

PS: MS can REALLY suck, can't it?
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (05-31-2011), SallyC (05-30-2011)
Old 05-30-2011, 12:39 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

You haven't been taking Viagra for your MS, have you? Sorry, bad joke, but we just had a thread here, where Viagra was suggested to help MS symptoms.

On a serious note though, it does sound like you had a series of side effects from something.

Take care and Welcome.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (05-31-2011)
Old 05-30-2011, 12:57 PM #4
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

You don't drink a lot of diet soda, do you? Or anything with Aspartame in it? It can cause all sorts of problems.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (05-31-2011)
Old 05-30-2011, 12:59 PM #5
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Vent away! and welcome to NeuroTalk .

I've had the near black out faint spells before, but mine I know to have been caused by hormonal changes. Perhaps this too can affect men?

It could definitely be an MS 'thing', but it could be something else entirely as well.

I'd definitely bring this to your neurologist/GP's attention. I wouldn't want to mess around with a racing heart during physical activity resulting in fainting spells. I'd again, definitely have that looked into.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (05-31-2011)
Old 05-30-2011, 05:37 PM #6
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default

Lyrica did not give me the problem you have, but it kept me from breathing well--to be more specific, it increased the "hug" which we sometimes get around the middle. I do not
like that drug, although some people get so much relief from it....but sounds like you are NOT getting it, with that "screw driver" working you over in several places.

You might say, well I've only been on it three days. But I say, I was only on one pill, and it completely stopped the pain left over from Shingles, which was very severe--but it also made me feel like I could not breathe easily--I've heard it called "air hunger". Now most people seem to get on with Lyrica, but maybe you are not one of them. If you were feeling great and thus went into intense "activity", that could be telling you something. I felt great on Lyrica--until I could not breathe well.

I use demerol only for pain. That is because I also have Porphyria, and demerol is one of the few drugs we can take orally for pain. I must not be addicted to it because I just stop if pain stops. I am taking more than I was, (daily now) because of toe neuropathy.

I can take Cortisone shots, although not Prednisone pills, and perhaps your worst spots might respond to that.
Mariel is offline   Reply With QuoteReply With Quote
Old 05-30-2011, 06:51 PM #7
Alaskan's Avatar
Alaskan Alaskan is offline
Junior Member
 
Join Date: May 2011
Posts: 7
10 yr Member
Alaskan Alaskan is offline
Junior Member
Alaskan's Avatar
 
Join Date: May 2011
Posts: 7
10 yr Member
Default

Quote:
Originally Posted by SallyC View Post
You haven't been taking Viagra for your MS, have you? Sorry, bad joke, but we just had a thread here, where Viagra was suggested to help MS symptoms.

On a serious note though, it does sound like you had a series of side effects from something.

Take care and Welcome.
I read that thread, "Viagra". Showed it to my fiance, she said "over her dead body" will she let them perscribe viagra for ANYTHING!

I started to document everything for my doc. including pictures of these swollen joints and red irritated marks. Tell ya what, last night at 2:30am, I woke straight up screaming in pain! Jesus, this stuff (whatever it may be) is for the birds! Wrist, both shoulders, knee, thumb, index finger joint, everything was really pist off. Lyrica hasn't touched a spec of anything. Finally got back to bed, woke up at 8:30 to a numb/tingling thumb, pain levels dropped to 1-3. Felt pretty good most of today, enjoying the sunshine outside (Hey, for us Alaskan's, the sun is a BIG THING! LOL) just relaxing. It's now 3:47pm and in the last 15 minutes the left shoulder is starting in strong, 6.

I have never in my life expirianced anything like this, truly crazy!

Thanks to all for the welcoming warm wishes, it's nice to chat with people whom understand you/what your feeling.
Alaskan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mariel (05-30-2011), SallyC (05-30-2011)
Old 05-31-2011, 04:56 AM #8
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I'm sorry you're in such pain. I'd definitely tell my doctor about it.

Have you been tested for Lyme Disease? Or Lupus? They can mimic MS in many ways.

http://www.webmd.com/rheumatoid-arth...s-lyme-disease

http://lupus.webmd.com/guide/lupus-s...tosus-symptoms

It's good that you're documenting your symptoms and keeping a log of them. It's hard to remember everything when you're talking to the doctor and a documented file will help the doc with his process of elimination.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (05-31-2011), SallyC (05-31-2011)
Old 05-31-2011, 04:26 PM #9
Alaskan's Avatar
Alaskan Alaskan is offline
Junior Member
 
Join Date: May 2011
Posts: 7
10 yr Member
Alaskan Alaskan is offline
Junior Member
Alaskan's Avatar
 
Join Date: May 2011
Posts: 7
10 yr Member
Default

Quote:
Originally Posted by Kitty View Post
I'm sorry you're in such pain. I'd definitely tell my doctor about it.

Have you been tested for Lyme Disease? Or Lupus? They can mimic MS in many ways.

It's good that you're documenting your symptoms and keeping a log of them. It's hard to remember everything when you're talking to the doctor and a documented file will help the doc with his process of elimination.
No, not yet. Waiting for my blood test results for any and all Arthritis. I have a CT Scan set for tomorrow morning to rule out herniated disks, stenosis and then go from there.

The last two night's have been just unbearable, this (whatever it is) is just insane. Last night's sleep (if you can call it that) was full of crazy dreams and little rest.

Today is better, thank god. Left shoulder is sitting at a 2-3, right shoulder at 1-2 and the rest is all quiet for the time being. I feel like I should run to the gym for a work out! lol
Alaskan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-31-2011)
Old 05-31-2011, 06:37 PM #10
carebear01 carebear01 is offline
Junior Member
 
Join Date: Nov 2010
Location: North of Detroit
Posts: 80
10 yr Member
carebear01 carebear01 is offline
Junior Member
 
Join Date: Nov 2010
Location: North of Detroit
Posts: 80
10 yr Member
Default

I think you should have gone to the ER. Maybe it is the Lyrica just not agreeing with you. Have you ever had a carotid doppler? or a stress test? I'm no doctor but do work in an ER and have seen alot...just saying. Hope you get it figured out.
carebear01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-31-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Definition Question- re meaning of "Full Body RSD" and "Internal RSD" ?? Cake Reflex Sympathetic Dystrophy (RSD and CRPS) 12 04-28-2013 10:47 AM
So which "existing" diabetes drug turns the PGC-1 Alpha "Master Switch" back on? caldeerster Parkinson's Disease 22 07-13-2011 11:23 AM
Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," FaithS The Stumble Inn 12 09-16-2009 04:42 PM
Can't sleep, back of thigh muscle "burns"... dllfo General Health Conditions & Rare Disorders 0 02-05-2009 03:49 AM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM


All times are GMT -5. The time now is 03:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.