I figured it out! If I get less than 5 hours of sleep at a time I am able to get out of bed with just a moderate but manageable amount of pain.

But then I am exhausted all day. And unable to get anything done and forgetful, which is causing me to feel crazy and my day is spent scheduled around a nap that still leaves me sleepy.

Or I can sleep like a normal person and spend the entire day battling pain and stiffness and wishing the stupid pain pills will kick in. The pills help to a point but the pain is still debilitating.

Today I am tired. 100 degree heat around here and no sleep. Doctors appts all day tomorrow is the ty infusion.

I don't know which choice to make tonight. No sleep or more pain. Its like a never ending battle with this cruddy disease.