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Old 07-25-2011, 02:03 PM #1
JJLL411 JJLL411 is offline
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Default Looking into CCSVI

Quote:
Originally Posted by californiafriend View Post
This may be a dumb question but I was wondering that if LDN is used in trying to helping heroin addicts get off heroin, doesnt that mean

that theres a small amount of heroin in LDN?Because I thought when they wein people off of heroin they use a small amount of it to help

with withdrawl. Is there any opiate effect to LDN and could that be why people feel so much better? I was also wondering if LDN has been

proven to actually help prevent relapses or has it just shown to help symptoms of MS? Does anyone here take LDN as their only MS

treatment?

I also was wondering why more and more people arent looking into CCSVI? And how can doctors turn away patients with blockages in their

veins just because its not proven to cure MS? If a vein is blocked (especially a main artery in your neck) I think it should be unblocked and

if it wasnt it would obviously cause some problems regardless of whether you have MS or not. From what I understand 99% of doctors

dont know how to check or look for the right things when testing for CCSVI (and most doctors dont even know how to test for CCSVI) so

people are having to go to clinics specific in CCSVI testing to get checked.

Anyways, thanks for letting me ramble on and ask a million questions Thanks everyone for being so helpful in this forum! You guys help

keep me sane thru my limbo-land!

California:
We've seen estimates that as many as 15000 PWMS have not only 'looked into' CCSVI treatment but have had the procedure done. My wife was one of them. Nine months ago, we drove from Pittsburgh, PA to Albany, NY for this simple procedure that lasted about 45 minutes. We saw immediate and dramatic improvements in her symptoms that day and, since then, have seen other subtle improvements to the point that she is now almost completely symptom free. It may not be a cure - but we're big believers in CCSVI treatment improving QOL. More and more interventional radiologists are getting onboard - a clinic just opened in Pittsburgh recently. The neurologists and BIG PHARMA are the problem. It's a turf war.
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Old 07-29-2011, 02:06 AM #2
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Hi,
I have been on LDN for almost three years and I had the CCSVI procedure too. My PCP gives me my script for LDN, now my Neuro does. My Neuro knows about my CCSVI too in Albany.

It is my body and I am in charge of it. No one tells me what drugs to take anymore. I had it with all the pile of drugs in my medicine basket, so I weaned off all of them. Best thing I ever did. I am very happy with my LDN and very happy I had the CCSVI procedure.

My Neuro now agrees with both. I never in a million years thought that that would ever happen.
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