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Old 06-28-2011, 02:43 PM #1
EmAli EmAli is offline
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Originally Posted by NurseNancy View Post
hi ali (can i call you that?),

i never had headaches but when i was finally dx'd with MS i had had it for "some time". as i thought back i could see certain sx's (symptoms).

start to accumulate a medical file on yourself. imho i think this is so important. get copies of the mri discs. and the reports. that's ever in case you see another dr.

after you have the contrast mri and you see your dr ask him/her what the plan is to treat your headaches, and MS if you're dx'd.

hang in there. take one thing at a time. you can always come here for info and support.
Thanks everyone for your answers. Now that I look back I can definitely see there is something going on, possible Hughes Syndrome if not MS. The reason I say Hughes Syndrome is because it is often diagnosed as MS because many of the symptoms match (although MS is EXTREMELY more debilitating). I have had the brain fog since my 20's and the brain fog is the worst after a migraine attack. I remember hitting my mid 20's and my right big toe was always numb, I thought those things happened to everyone. I am always tired and I accuse myself of being lazy (I have to remind myself that a lazy person doesn't want to do....and I WANT TO DO). Then the migraines started and have become more painful and frequent with age. I also got patted on the head and I was told to relax it is just stress. I don't know if sleep paralysis is connected to MS at all but I noticed before a bout of migraines I experience sleep paralysis and within a few days I have migraine after migraine. I have horrible eczema on my hands, my right hand is the worst and it hasn't cleared up no matter what I do....this has been going on for 12 years. I also have frequent urination, it is ridiculous and drives me crazy. This past month my hip started going out on me for no reason at all and it just hurts like hell, I feel like someone has been beating me. I am also depressed and paranoid to the point of being manic, but I have a beautiful family and I have nothing to be depressed about (thank god). Honestly I really don't know what is going on, but I have always considered myself healthy because I look healthy and everyone tells me I am healthy....but honestly I don't really feel very healthy and haven't felt that way for a long time....I know that it is not normal to feel this way.
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SallyC (06-28-2011)
Old 06-28-2011, 02:51 PM #2
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Lightbulb

I am just going to peek in here for a moment...

Rashes that won't go away, numbness, neuropathy, migraines, all can be due to gluten intolerance.

Please look into this...here is our Gluten forum:

http://neurotalk.psychcentral.com/forum13.html

Over the years I have been on health boards... there have been some people who turned out to be Gluten intolerant and have similar MS like symptoms (along with what you have already!).
So please do check that out.
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Becca44 (07-05-2011), Dejibo (06-28-2011), dmplaura (06-28-2011), SallyC (06-28-2011)
Old 06-28-2011, 08:15 PM #3
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My MS out of full blown relapse is exactly as you describe: Migraine/head pains.

I did have 2 hallmark symptoms during relapse that satisfied my diagnosis: L'Hermittes Sign and girdle-banding (sensory MS symptoms).

I went years (migraines began at childhood) thinking I was just suffering really bad migraines and I had crappy luck to be getting them... but them the inflammation process of MS just took over, and that's when all the other symptoms (though for the most part, sensory) crept up on me and got me into a doc's (several, what a rotten experience going through so many to get answers).

I hope it's not MS and you do get answers and relief.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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