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Old 07-12-2011, 01:28 PM #41
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Tricia, it was difficult in the beginning when I gave up my car. One, because I can still drive when my vision is good. Two, because even though I rarely went anywhere anyway I always had the option to go if I wanted to. Now, I just can't. I can use DS's cars when I need to go somewhere but I feel like I'm being an inconvenience.

I've gotten used to being home most of the time. It doesn't bother me anymore. On days I do go somewhere it wears me out! Being alone doesn't bother me, either. In fact, most of the time I prefer it. But I do love having my kids around.

It was just too expensive for me to keep a car and all of the expenses that go along with it. As rarely as I drive it just wasn't practical. But, I've learned how to stretch a dollar and some good budgeting practices while being on SSDI. Everytime I hear on the news that they're planning to cut more out of the SS budget it scares me.
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Old 07-12-2011, 02:00 PM #42
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Quote:
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That's what my Neuro said, too. PT won't help. I try to walk correctly but my gait just sort of does it's own thing. I wonder if it looks as weird as it feels?
I'm pretty sure my gait looks weirder than it feels .
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Old 07-12-2011, 02:48 PM #43
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My gait is kinda like a penguin walking. I saw some penguins on the National Geographic channel the other day and my first thought was "gosh, I walk like they do"!
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Old 07-12-2011, 02:53 PM #44
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Quote:
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My gait is kinda like a penguin walking. I saw some penguins on the National Geographic channel the other day and my first thought was "gosh, I walk like they do"!
My gait changes. My gait is bouncy sometimes. Other times, I think I look wobbly. Then other times, it's more of a limp. But, then again, I have never seen myself walk so I guess this is just how I feel when I walk and what I think I look like. The bouncy gait I know I have as both DDs have commented on it. The drunk gait I know I have and so does some of the bushes I've fallen in to. LOL
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Old 07-12-2011, 03:48 PM #45
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Wow...this is like "insights for MS peeps"...

I am mad at my neuro. I went in a couple of weeks ago, because my legs are so bad...the right one isn't walking right, the foot is goofy when I walk. He did notice that change.
But I have had so much pain when I walk for awhile, so much trouble with arm weakness...and all he did was "See you in six months."

So I am taking my care into my own hands. My requip isn't working as well again. In the past, I would call him, and he would take me off of it for two weeks and put me on gabapentin. I hate going off of requip. It is nerve-racking because my legs are jumpy almost all night the first two nights. So now I am just adding gabapentin to the requip the way my old neuro did. I don't have to go through withdrawal, and I feel better immediately.

I am not going to call him any more when something new crops up. Why bother, when he doesn't do anything different? It's an hour drive one way, then I wait for an hour because he talks so much he's an hour behind, and then I get no changes in treatment.

I have a definite prejudice against the medical profession.
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Old 07-12-2011, 04:32 PM #46
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How am I feeling? I need a root canal and could not get an appointment with the specialist until August 4th.
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Old 07-12-2011, 06:33 PM #47
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Quote:
Originally Posted by Debbie D View Post
I am mad at my neuro. I went in a couple of weeks ago, because my legs are so bad...the right one isn't walking right, the foot is goofy when I walk. He did notice that change.
But I have had so much pain when I walk for awhile, so much trouble with arm weakness...and all he did was "See you in six months."
Don't feel bad, Debbie. I had the same exact experience on Monday. I asked for PT but he said it wouldn't help. My left leg is being all gimpy and I'm not walking correctly. This makes my hips and lower back hurt.
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Old 07-12-2011, 09:57 PM #48
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Other than the icky weather, my weak legs, achy breaky joints, the fact that I can't seem to get enough sleep, my age and the dam MS, I'm just fine, TYVM..
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Old 07-13-2011, 07:50 AM #49
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its very humid here this morning, but I walked anyway. Quickly went blind, but kept on trudging. im pooped! I need some time to recover from that. Humidity is my enemy. I am going to shower, and let the DH cook me an egg. Then I need to go do errands.
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Old 07-13-2011, 09:35 AM #50
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Today, I am trying something different. Since mornings have been rough on me, I usually shower in the afternoon. But, I noticed that on the days that I take my shower in the morning, I seem to do better all around. So, I showered this morning in hopes of a better day. I dragged my shaky legs in to the shower and made myself do it. I have fallen too many times in the shower lately so I wanted to get it done before DBF left for work. I'll let you all know how the experiment goes. The only down side of this, when I take my shower in the afternoon/evening it cools me down and relaxes the muscles. I guess I could still do that as well.

The hug is still here. I know I should be flattered that it loves me so much it wants to just hug me all day 24/7, 365 days of the year. But I am not flattered. Ice is in order for the day as well. I may even call my massage therapist and see if she can come today instead of tomorrow. I know she gets up real early but I'm waiting until 8 to give her a call. She lives a couple of streets away from me. I didn't know that when I first called her. These massages have been helping me so much!!!

The heat and humidity have taken away some of my focus, concentration, and motivation, to an extent. So, today I am going to try to push through that and find some detailed work to do. That basically means, detailed design work.

Off to a better day today and learning new ways to deal with some of the loneliness I have been feeling lately.
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