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07-11-2011, 08:56 AM
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#1 | ||
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Junior Member
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Does anyone know if PPMS ever stops progressing at some point in time?
Do people with PPMS always end up bedridden? Have an H with PPMS since 1995. In a WC now, but still has upper body mobility. thanks. |
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07-11-2011, 10:26 AM
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Grand Magnate
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I was diagnosed with PPMS in 2002, but looking back now see it started sooner, @1994.
2 years ago I went from walker to chair. Pain is a minimal, although physically slow, cognitive seems. Think I had plateaued for years, then bad legs, bad one arm, no idea what will happen next. Will a bus hit me or PPMS? I do nap, but fatigue not overwhelming.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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07-11-2011, 11:04 AM
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#3 | ||
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Junior Member
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Thanks for your response Kicker.
H was dx about the same time as you, but had sx starting in 1995. He was walking without aids until 2005, then two canes in 2007, then into a chair last year. His arms and hands are still ok,for now. Takes a small amoutn of baclofen, but nothing else, except tylenol once in a while. I wish there was some way of knowing how much worse things will get, but no one seems to know. |
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07-11-2011, 12:00 PM
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#4 | |||
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In Remembrance
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I answered you in the PPMS Thread..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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07-11-2011, 01:08 PM
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#5 | ||
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Junior Member
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Quote:
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| "Thanks for this!" says: | SallyC (07-11-2011) |
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07-11-2011, 03:41 PM
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#6 | |||
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Grand Magnate
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No one knows how this journey turns out.
__________________
Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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07-11-2011, 07:11 PM
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#7 | |||
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In Remembrance
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Quote:
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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PPMS - does it ever level off after years of progression?
Linear Mode
