My phone is being blown up by the countless cals from my neurology office. They want me to sign up for financial assistance through Biogen Idec for my Tysabri infusion. I missed last months infusion because of the insurance fiasco that I am still trying to get straightened out.

BUT, I feel great! Better than I have felt in years. DH2B asked me last night how I am not tired after all of the running around I have been doing. And my response was simple; there is a lack of poison flowing through my veins and I wasn't forced to be sick for 2 weeks.

Now here is my issue. The docs are adamant that I get my infusion. Understanding that Ty is the only thing that has worked to slow down the progression of this disease since i was diagnosed, I agree that I should be back on it. But there is a problem with getting it approved through Biogen that my doctors are not quite getting.

The financial assistance would only cover the infusion. It does not cover the neuro, the primary care, or the other things that I need. It does not cover the other meds that I am out of, nor does it cover the mandatory follow up with the PCP nor the antibiotics that I will need the week after the infusion. This isn't a "maybe" I will need this. This is a every single time I have had the infusion I have ended up with a sinus infection, inner ear infection, and a UTI. It is like clockwork the week after the infusion and te reason I schedule a follow up at the same time I schedule the infusion.

Why can't my neuro understand how this works?