(((((Craig))))) Have ya tried LDN? If you are taking heavy duty opiod pain drugs, then it probably won't work, but it sure erased my chronic MS fatigue. Just a thought.

Craig

I've only used Provigil in the past and it worked well for me.....but costs a fortune if you don't have good insurance.

What types of vitamins do your take? Have you had your D and B12 levels checked?

I hope you can find something that works for you.

Allow me to provide a little better perspective for you on my unique situation.

My neurological disease is Spinocerebellar Ataxia, but the boogie man is Cerebellar Degenerative Disease. Since we are dealing with atrophy and dying of the cerebellum, medications really have little effect and the pain meds are kept at a minimal level because I will not live in a drug induced stupor.

I have had several sleep studies revealing Restless Leg Syndrome and severe sleep apnea where I stop breathing up to 48 times an hour. I use a CPAP machine consistently no matter where I travel. The sleep disturbances are a result of the brain stem stroke, combined with the above diseases are very unmanageable without giving me such strong meds I am totally knocked out.

My blood labs are all in line including no heavy metals, B-12, Vitamin D, Thyroid, all of that has been checked and are fine. I do take a strong, wide spectrum daily multivitamin twice a day.

I am doing this inquiry on my own to get any ideas for my doctor to check out. I no longer see any specialists as they all agree there is nothing more they can do for me, literally. Thus, I'm looking for any options that may work under my circumstances. The Naltrerxone (LDN), Adderall, Adderall XR, 1,000 mg of acetyl L-carnitine and 200 mg of alpha lipoic acid daily, seem to have strong potential. I will research them on the Internet and review them with my doctor as I've not tried any of them.

Thank you for all of your suggestions. I will now follow up and see what happens. As you can see, the combination of health challenges including the final prognosis, make all of this very difficult. I will keep you informed.

Try 1000-2000 mcg's of B12 when you get up for energy. 4000i.u's of Vitamin D. Forget about lab resuts go by how you feel. My b12 level was maxed on paper taking 500mcg's. D takes a while to build up, also takes a long time to go down. It get's absorbed in your cells & doesn't just pee out.
Some body builders inject B12. No idea what dose that would =.
I take 7 baclofen/day for spasms.

Hi Craig,
I wish I had a magic wand for you and everyone, but alas I don't.

Fatigue is a bummer. All those pain meds must give you a lot of severe fatigue, and morning drug hangover (as I call it). But you need your meds.

I tried a few drugs to stay awake. Provigil when working, got me home safe driving but still exhausted. It is not a cure.

Some use Ritalin, I think that is the ADHD drug used in children to calm them yet wakes those that don't have that problem.

Have you been tested for CCSVI? Only a ultrasound test by a trained IR, MD to find out. They find many diseases have blockages in the jugular veins and the brain cannot drain blood properly back down.

Best of luck my friend, I hope you find something to help you.

Hey..did you finish your book?


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I take Nuvigil 200 mg daily and it is time released. I take a lot of other meds and this seems to keep me going with caffeine added in the am.

thats all I have to say

I hope you had a good nights sleep..