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Old 08-29-2011, 08:44 PM #1
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In the over 45 years with MS, I have never, to my knowledge had a cognitive test. At least I never received a report on the results of one.....Wait a min, maybe I forget..

To tell you the truth, I don't think I'd want one. MS and aging is quite enough for me, TYVM, I wouldn't want to know if I was loosing any of my brainpower.

I read, I do puzzles and play other word games, to keep my brain working. So far, so good.

I am so so sorry that some of you are suffering eye problems and cog fog.
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Old 08-30-2011, 04:05 AM #2
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Quote:
Originally Posted by SallyC View Post
In the over 45 years with MS, I have never, to my knowledge had a cognitive test. At least I never received a report on the results of one.....Wait a min, maybe I forget..

To tell you the truth, I don't think I'd want one. MS and aging is quite enough for me, TYVM, I wouldn't want to know if I was loosing any of my brainpower.

I read, I do puzzles and play other word games, to keep my brain working. So far, so good.
Hiya Sally

This was the first time I have had Neuro-Psych testing...in 26 years of MS. The reason for testing started due to some very profound cognitive/memory/behavioral changes to the point my husband was researching Alzhiemers

I had been on a Statin (high cholestrol) for approximately a year and a half. It was the statin that was causing those profound changes. I went off the statin a couple of months ago and have seen quite a bit of improvement but I wanted to follow through with the NeuroPsych testing.

When I went in for testing the NeuroPsych told me he had an associate contact him the other day about a patient of hers who had been on a Statin and had memory/cognitive problems related to taking statins. He had said there is starting to be quite a bit of medical information and articles as to statins causing memory/cognitive problems.

My NeuroPsych said he would be doing a research paper about statins and memory.

Part of my descision to stop taking the statin was from searching for information about statins and I had also looked for information here at NT. MrsD had an older thread about Statins that was quite helpful. Between what I was reading on the internet combined with information MrsD had posted I finally decided to get off the statin and see what would happen...I am so thankful I did.
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Old 08-30-2011, 06:58 AM #3
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Quote:
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In the over 45 years with MS, I have never, to my knowledge had a cognitive test. At least I never received a report on the results of one.....Wait a min, maybe I forget..
Me neither Sal. I just had my 34th anniversary of being diagnosed... happy birthday to me .... but I haven't had any type of psych evaluation/cognitive testing in all that time.

I'm wondering if this should be one of those tests they give a newly diagnosed MSer so there's a baseline for later. Might be helpful to have before and after scores if SSDI is sought at some stage in the future.
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Old 08-30-2011, 11:00 AM #4
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One of the things the statins do is cause reductions in the natural levels of coenzyme Q-10. Most folks on statins would do well to take a Co-Q10 supplement to minimize that effect.
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Old 08-30-2011, 11:42 AM #5
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One of the things the statins do is cause reductions in the natural levels of coenzyme Q-10. Most folks on statins would do well to take a Co-Q10 supplement to minimize that effect.
Hi TXBatman,

Taking a statin took my mobility, my strength, my mind, my memory, extremely increased my fatigue and I lost my ability to drive...this medication took away my ability to have ANY kind of life. Suicide was becoming an very real option.

No supplement would have changed that

The only option I had was to stop taking it.

I should add: I was taking Q10 when I was using the statin and I still use Q10.
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Old 08-30-2011, 01:01 PM #6
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Wow Snoops, that is very important info to have!!!! I am so happy that you are no longer on this statin and your awful side effects have diminished.

I had already heard that statins could cause muscle weakness but not cog fog.

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Old 08-30-2011, 02:48 PM #7
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I have tried various statins, and get that awful muscle effect from many of them...so I am on two mild drugs, one of them zetia which works in the intestines...I also take CoQ10 as directed...but I have been on these drugs for many years and have only had severe cognitive difficulties the last 3-4 years...
It would be very dangerous for me not to be on anti cholesterol drugs, due to very high numbers and a family history of heart disease...
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Old 08-30-2011, 04:07 PM #8
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There is some information out about statins and memory loss/cognitive problems. The NeuroPsych I saw said there will be more as, in his profession, more and more cases are being seen...with and without MS.
http://www.scientificamerican.com/ar...art-medication

This is a thread from the medication forum and I agree with MrsD...statins are not safe.
http://neurotalk.psychcentral.com/thread144284.html
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Old 08-30-2011, 09:17 PM #9
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One would think that would be valuable data, Koala, but it seems to be relatively rare. I went on my own and requested the testing, it was never ordered by any doctor. I just felt lucky there was a neuropsych nearby and I didn't have to go far for testing. I think at the time she was the only one in the state.
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Old 08-31-2011, 10:08 AM #10
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My neuro explained to me that she recommends against neuropsych testing until it is needed for something like a disability hearing, because the test results can also be used against you in some cases. She said it is better not to do until you need it to tell you something.
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