Welcome, Monkey! Sorry for your health issues, but glad you found us!

I hope your new neuro will LISTEN to you and be HELPFUL. Those darned docs who take our $$$, but don't give us anything in return are just lame.

I do hope you'll continue to post and get acquainted with the good folks around here. This is a nice place to be for help and support.

Make sure you give us an update after your appt., k?


Oh, BTW, who's Mr. Wonderful and when is the wedding date?

I haven't. I've just been told to see a neurologist so I made an appt. with one locally. Vitamin D (50,000iu a week) made my symptoms far worse than they are (so does heat though :\) so they PA took me off of it. I've been taking B12 3,000 mcg daily under the tongue on an empty stomach for a few months now. This was prescribed by the herbologist.

I did read a lot of threads the past two days..and somehow made it onto page 82. I can definitely see that everyone has their own "quirks" as I like to call it

Thank you

Oh gosh, yeah I was sooooo ****** about the rheumatologist. I just got the bill several months later...made me even more mad.

I'll do my best. I'm usually pretty active in forum communities and have administrated some forums with around 80,000+ members before so if I find a place I like, I'll stick around. You all seem pretty great and active. Other forums about MS seem to be pretty quiet. (last post august 2010 )

Will do! I'm really quite nervous

Mr. Wonderful moved here from England in 2007 because of me. We're hoping next august but because I've pretty much lost my job recently and can't really work anywhere else with my health...well it costs a lot to get married. I feel bad for him though and have given him the option to leave many times...he's watched me go from a very active and healthy girl....to one who can't go out anywhere and is stuck inside. He'd just hold me close and sing "Just the way you are" by Bruno Mars. Of course I'd start bawling...but while I was my sickest he proposed. I know he loves me...

sorry you are having helath problems, reagrdless of what it ends up - limboland sucks.
Congra on being engaged. You are both lucky to have found someone who completes you!

Thank you very much!

(((Monkey))) I'm sorry you are going through all of this. Sometimes it takes a while to get a definite dx of not only MS but other conditions/diseases as well. Hang in there and be persistent. Let us know how it goes with the Neurologist.

BTW - Hang on to that man. He sounds like a winner.

Thanks tkrik. It has been a long road and many years of suffering with no answers. I'd just like an answer...so at least I can start to move on. Not having an answer sucks. I'll let you know I might possibly try and get the appt. bumped up...things aren't going so well for me right now

Thanks, I will. He's my everything.

Anyone ever go into the chat? I've been in there since I joined but it's mainly filled with people from the psychcentral area...not NeuroTalk

I got a fibro diagnosis when I was 30...and had it for several years before that. Many of your sxs seem to be associated with fibro.
Keep a symptom journal with dates of onset & dissipation. Also keep a list of questions for your docs.
Make sure you are drinking enough water-muscle problems can be caused by dehydration.
Make sure you also get enough potassium daily.
Try to exercise, even if it's just a small walk, every day. With fibro and MS exercise is important.

It took me a few years to finally get an MS dx...I was told it was migraines (didn't have headaches), small fiber neuropathy, and other things.

*edit*
Yeah...fibro has been mentioned to me too...and the possibility of both fibro and ms
I need to get my journal going again. I just hate writing in it.
I'm trying to drink enough water..it's not easy some days though
I'll work on the potassium...and trying to excersize more. I was told stretching only.

Thank you