(((Monkey))) I'm sorry you are going through all of this. Sometimes it takes a while to get a definite dx of not only MS but other conditions/diseases as well. Hang in there and be persistent. Let us know how it goes with the Neurologist.

BTW - Hang on to that man. He sounds like a winner.

Thanks tkrik. It has been a long road and many years of suffering with no answers. I'd just like an answer...so at least I can start to move on. Not having an answer sucks. I'll let you know I might possibly try and get the appt. bumped up...things aren't going so well for me right now

Thanks, I will. He's my everything.

Anyone ever go into the chat? I've been in there since I joined but it's mainly filled with people from the psychcentral area...not NeuroTalk

I got a fibro diagnosis when I was 30...and had it for several years before that. Many of your sxs seem to be associated with fibro.
Keep a symptom journal with dates of onset & dissipation. Also keep a list of questions for your docs.
Make sure you are drinking enough water-muscle problems can be caused by dehydration.
Make sure you also get enough potassium daily.
Try to exercise, even if it's just a small walk, every day. With fibro and MS exercise is important.

It took me a few years to finally get an MS dx...I was told it was migraines (didn't have headaches), small fiber neuropathy, and other things.

*edit*
Yeah...fibro has been mentioned to me too...and the possibility of both fibro and ms
I need to get my journal going again. I just hate writing in it.
I'm trying to drink enough water..it's not easy some days though
I'll work on the potassium...and trying to excersize more. I was told stretching only.

Thank you

definitely see a neuro soon - hopefully a good one - maybe one associated with Emory if you can.

MS, MG, something else, I have no idea, you'll have to have more tests unfortunately. Make sure they check B-12 too.

The awful heat wave this summer could have made things worse, so you might feel a bit better soon now that it's cooling off some.

Not knowing what's wrong is so hard, I've been there.

Hang in there - best of luck.