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#1 | |||
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Wisest Elder Ever
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Wear playtex gloves on your hands and try tying a shoe.
Try to appear "not drunk" while weaving through a crowded store (with people staring at you). Put on a pair of shoes a size too small with extra thick socks on. Then walk normally. Struggle to find the words you want to say while someone looks at you impatiently. Trip over flat ground.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#2 | |||
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Wisest Elder Ever
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One last thought:
Fix a simple cup of coffee without making a complete mess. ![]() Spread butter on toast with a numb hand without dropping the knife. ![]() Carry food on a plate from one point to another and still have at least some of the food left when you get there! ![]()
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#3 | ||
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Member
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There is a fundraising event here in Oregon (and at least in one other state) where people run an obstacle course that is made to make them feel some of the symptoms you could get with MS. They have a long trench of thigh deep mud you have to run through. There are all kinds of obstacles in it, and I can't remember what they are (thanks MS).
Maybe you could set up your own obstacle course. Like wear thick snow gloves while trying to put on a coat with a zipper. Then look through binoculars backwards and try to fix a cup of coffee without making a mess. Then the flipper on one foot and have them walk across the room and the spinning them around and then do simple balance tests. You could have them sit at a table and try to write nicely while someone shakes the table. Also the walking with weights strapped to their ankles. If you could have them cross their eyes so that they see double and thread a needle. Put a girdle on them and tighten it up just to where it's uncomfortable (to keep it safe) to simulate the hug. Most of my symptoms are pain and you really don't want to simulate those for safety reasons, but the way I would describe my legs would be if you wrapped hot black top around my legs on a summer day. Trigeminal Neuralgia is like to worst toothache you've ever had in several different places and something pushing intense pressure behind your eyeball. I can't seem to think to give you any more suggestions but if I come up with any I will let you know. But I want to say that I think it's great that you are doing this. Most people just don't understand MS at all. The invisible symptoms are the most difficult at times. Most people look at someone with MS and will say, "You look so good!" That can be so frustrating when you feel so crappy! It's nice to see people raising awareness for MS, thank you! Kristie |
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#4 | |||
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Elder
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When I was a little girl I had this invisible friend. I didn't tell anyone about her because I thought they would laugh. I always sat a little on the side of my seat to make sure she had room to sit with me. Well I still have this secret friend. Some days she likes to be with me more than on others. She is very bossy and likes to have things her way. And some times she is mean. She has this terrible electric prod that she jabs in my toes whenever she wants to. She has her invisible water she drips on my arms and legs and her invisible bugs that crawl just on my wrist, no where else. She makes me stay awake a night for no reason. she shows me that she can run and have fun and I can just walk. She loves to move things so I can't find them. I wish I had never gotten my invisible friend.
I guess I should say that this is all a true story. I did have an imaginary friend. I wish I could remember her name. She was with me for a long time.
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. Last edited by doydie; 09-25-2011 at 07:08 PM. |
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