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Old 10-04-2011, 08:05 PM #21
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I have a port in my wrist. Need I say more?
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 10-11-2011, 09:07 AM #22
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It happens all the time! I'm just glad to know I'm not the only one.
As for my whine, it's mostly always the same: Its frustrating trying to explain to my loved ones how I feel. I know they care, but they don't truly understand. And they try to help, but sometimes their "help" just comes off as insensitive. But I feel horrible for feeling that way!
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Old 10-11-2011, 11:15 AM #23
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Welcome Lizz..

Loved ones mean well, but unless they have MS too, they haven't a clue, how and why we hurt. That's what this place is for. We do have a clue and understand..
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Old 10-11-2011, 05:00 PM #24
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I'm ready to throw in the towel!! I don't want to say that MS has won but it has got me on the ropes and I am fading fast. I did some calculating today and it does not look good. I choke on about 50% of whatever. Spit, water, air or food, it doesn't matter. It could happen at anytime. My new neuro wants to send me to p.t for it but I already go 3x a week for my frozen shoulder. At $25 co-pay a pop, I would be begging 4 spare change on the expressway ramp. And still working a fulltime job. I just can't seem to win. That's my whine cause if I tried the other kind I would have even more health woes.
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Old 10-11-2011, 06:05 PM #25
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I'm a choker. Found out I dislike eating with others who talk and distract me. I gotta pay attention to what I'm doing.
Leaning forward when swallowing helps. Never lean back!!!!
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Old 10-11-2011, 07:14 PM #26
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I hear ya (((((Mochagirl)))))
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Old 10-11-2011, 11:33 PM #27
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I choke on my own spit all the time Sal. I explain it as allergies or something else. Since I work in sales and retail it can be a bit difficult at times to make up excuses. It usually happens when I try to multi-task and get ahead of myself.
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Old 10-13-2011, 12:02 PM #28
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The good news is, the temps are in the 50s.
The bad news is, the humidity is 97%

My body feels waterlogged..
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