advertisement
Reply
 
Thread Tools Display Modes
Old 10-10-2011, 08:09 PM #1
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

reaction to the gilenya too......I am to start copaxone next week!! I just don't care anymore!
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
daisy.girl is offline   Reply With QuoteReply With Quote
Old 10-10-2011, 08:22 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quote:
Originally Posted by daisy.girl View Post
reaction to the gilenya too......I am to start copaxone next week!! I just don't care anymore!
Yes you do and so do we!!
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (10-11-2011)
Old 10-11-2011, 01:33 PM #3
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
Default

(((Hugs!)))) I feel your pain! I do know what you're talking about, that horrible nerve pain, and it also causes muscle spasms, and I NEVER had a migraine before MS. Have you tried massage? It seems to help me a lot if I have it once a month or so. We have a franchise where you can buy a membership and then it's not very expensive to get a massage, and it has been a Godsend for me.

As far as the work - PPBBBBBTTHHTT! That work will still be there when you're feeling better. A little dust, dirty dishes or laundry never killed anyone! I know it's hard, but sometimes you have to put yourself first.
__________________
msarkie

"Never try to teach a pig to sing.
It wastes your time, and annoys the pig."
msarkie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (10-11-2011)
Old 10-15-2011, 05:02 PM #4
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

thanks so much to all of you...

I would love a massage, but doesn't look like it will happen in the near future. I feel really depressed. I don't want to get dressed, or cook, or clean, or go anywhere, or talk on the phone.....I just want to sit in my PJ's and either stare at the TV or the computer!

I hate feeling this way!!
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
daisy.girl is offline   Reply With QuoteReply With Quote
Old 10-15-2011, 09:44 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Daisy, have you discussed the possibility of needing an anti depressent with your Doc? Depression and anxiety can be and are, in a lot of cases, directly caused by MS. (according to my Neuro/Psych).

I have been helped and I believe you can also be helped by the right SSRI antidepressent med.

Call your Doc and see what he/she says..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 10-16-2011, 09:52 PM #6
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
Default

I agree with Sally. Just the emotional ramifications of being dxd with an incurable disease could be depressing, but with MS you get the added "insult to injury" that the disease itself messes with your brain and can cause a biologically based depression. It's a good idea to have a psychiatrist that you can depend on and see regularly. This is not for counseling but for supervision of antidepressant meds and interactions with other drugs. I go to see mine tomorrow - yay! She's cool.
__________________
msarkie

"Never try to teach a pig to sing.
It wastes your time, and annoys the pig."
msarkie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (10-17-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:28 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.