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MS HUG or ???

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Old 10-19-2011, 01:09 PM #11
daisy.girl daisy.girl is offline
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I do take Klonopin twice a day......thanks
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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"Thanks for this!" says:
Lady (10-26-2011)
Old 10-21-2011, 09:56 AM #12
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Quote:
Originally Posted by Lady View Post
Daisy, the dystonia can leave you with tight, stiff muscles from being pulled and jerked. How often do you get the dystonia attacks and how long do they last?

Call your doctor and see what his opinion is, perhaps some medication or massage therapy can help. I don't think is sounds like the MS hug to me, which has been with me for about 12 years straight. It's the pits. Whoever named it the hug, had a terrible sense of humor.
I often refer to it as the MS Vise Grip. It is not a hug!!! Like you, I've had it for years. Mine started in 1997 (pre MS dx - I was dx in Jan. 06). At 1st it was on and off, now it is all the time and has been that way since around 2003. Some days are good and others are bad. I get regular massages now and that helps. Some days she is amazed at how much those intercostals are in a spasm. The massages do help me and I'm so thankful I found a MT I could afford.
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daisy.girl (10-21-2011), Lady (10-26-2011), SallyC (10-21-2011)
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