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Old 11-10-2011, 01:55 PM #1
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Hi Aynadee, nice to have you back. Obviously you made the right decision in stopping Rebif and congrats on feeling better.

I'm sorry about the fact that you still have MS with all it's nasty sx, especially the bowel misfuntion. Been there done that .

There are other DMDs you could try, but I understand wanting to be free of the side effects of them, especially, it they aren't working. The big dent in your leg could have been caused by the shots. I hope it goes away.

LDN might be something for you to try.
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Old 11-10-2011, 02:02 PM #2
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So gad you're feeling better. Diet plays a huge role in how we feel - with or without MS. It might take a while to notice any really big difference but you can rest assured that a good diet will benefit you no matter what. Give it some time. MS isn't going to go away but you don't have to be miserable and/or let it rule your entire life.
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Old 11-10-2011, 04:48 PM #3
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i'm very glad that you're doing better. sometimes stopping meds is a good idea. the indentation sounds like it might be from injecting if you were in that area.

don't be afraid to tell your dr. it's your decision and you know what's right for you. i hope you con't to do well.
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Old 11-10-2011, 10:49 PM #4
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I've been DMD free for almost 3 years and feel soooooooo much better than I did taking them. I was on Avonex for 3 years, copaxone for a couple months ( the dents in my legs went away) and Rebif for a short period. Never regreted stopping all of them. Some ppl do ok on them and for that I am glad, they just weren't for me. Have had no relapses without them thank God.
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Old 11-11-2011, 05:00 PM #5
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Thank you all for the support!

I hopefully will continue to do well off of the DMD, I don't want to revisit those days.

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Old 11-11-2011, 05:29 PM #6
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Quote:
Originally Posted by AynaDee View Post
Thank you all for the support!

I hopefully will continue to do well off of the DMD, I don't want to revisit those days.

They're not for everyone. I'm glad you at least gave them a try. There's many here that don't take a DMD. There's many that do. The great thing about this place is that you can do either and still be loved!
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Old 11-17-2011, 05:38 AM #7
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Welcome back Aynadee. I know that some people do well on a DMD but I was not one of them. After 2-1/2 years on Avonex, I stopped because it was like poison to my body. That was a low point in my life and I was probably six months away from filing for SSDI. That was 2004 and I'm still working full time.

I didn't have any dents in my leg from the Avonex but to this day my muscles do still hurt and are tender from time to time from the IM injections.

Good luck with the hearing - hoping you'll hear favorable results soon!
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