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Old 11-11-2011, 10:47 AM #1
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Kicker, maybe you can advise me about this.

How does one know that they've entered PPMS?

I've had MS for years even though I've only been officially diagnosed for 6 years. I'm finding that I really could use a Rollator now. I know it would help my walking. My balance is just shot.

But I'm wondering if it will make things worse? Will I become so dependent upon it that I won't be able to walk without it? I know.....sounds ridiculous but I think about it all the time.
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Old 11-11-2011, 11:27 AM #2
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Kelly, Are you thinking of SPMS? When I started using a rollator, I loved it. It helped me to walk like a normal person. I could get places a lot faster, without losing my balance and when I got there, I could sit down. It was great shopping..
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Old 11-11-2011, 11:35 AM #3
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Kelly, Are you thinking of SPMS? When I started using a rollator, I loved it. It helped me to walk like a normal person. I could get places a lot faster, without losing my balance and when I got there, I could sit down. It was great shopping..
Yes.....I couldn't think of the name!! Wonder why?

I think a rollator woud make things so much easier for me but I'm just hesitant about using it. I was the same way about my cane. But the cane really doesn't help me keep or regain my balance. The main reason I use it is so other people won't think I'm drunk!

I will get a rollator for me to use after I have surgery. With my balance being so bad I know it will keep me from falling. It's just hard to admit I need it. KWIM?
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Old 11-11-2011, 12:31 PM #4
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I Know exactly what you mean and I fought going from cane to walker and finally scooter, but was amazed at how much I loved them once I needed and used them.

Today I thank God for my scooter and a blessing to the person who invented them. I just couldn't live without it. KWIM?
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Old 11-11-2011, 04:10 PM #5
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Quote:
Originally Posted by Kitty View Post
....I will get a rollator for me to use after I have surgery. With my balance being so bad I know it will keep me from falling. It's just hard to admit I need it. KWIM?
That's when I got my rollator too. I had major bowel surgery with lots of complications after and I was extremely weak. That weakness along with my wonky left leg and already poor balance, meant that I just couldn't manage without one.

Now I'm back to using crutches or my cane 24/7 and only use the rollator occasionally, but I do like knowing that it's there should I need it on any particular day.

And no Kitty, getting a rollator didn't make things worse for me. It just gives me more choices for those days when getting about is more difficult than others.
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Old 11-11-2011, 11:29 AM #6
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Quote:
Originally Posted by Kitty View Post
Kicker, maybe you can advise me about this.

How does one know that they've entered PPMS?

I've had MS for years even though I've only been officially diagnosed for 6 years. I'm finding that I really could use a Rollator now. I know it would help my walking. My balance is just shot.

But I'm wondering if it will make things worse? Will I become so dependent upon it that I won't be able to walk without it? I know.....sounds ridiculous but I think about it all the time.
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Aw Kitty,
I don't know. I'm on neuro #5 (3 moved on me) and PPMS seems to be a dirty word to them. I asked each neuro directly my classification, certainly walked out feeling answer was PPMS, but a sense of most Neuros need very direct questioning.

I read somewhere some doctors (Who? Age? Never mentioned) believe aids lead to increased inability. Some don't. I know a wheelchair put an end to my falling, I think walking was over anyway for me. As PPMS, I do no DMDs, my current neuro is ok with that. Going to an aid (crutches, rollator, chair) was tough. But being in a chair gives me more freedom. I get to the toilet on time. The microwave no longer rings while I'm trying to g..e..t there. I go into places I once didn't. Good and bad.

You mean RR to SPMS. PPMS is from very beginning, some doctors think RR and PP are two totally different things all together. Jim is SPMS, Sandy On FB may have better answers

.
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