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Old 11-19-2011, 04:26 PM #1
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Twinkletoes Twinkletoes is offline
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Join Date: Jan 2008
Location: Beautiful central Utah
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Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default Quitting LDN (and random ramblings.)

Some of you may have read that I quit taking NuVigil a couple of weeks ago.

I feel much bettah!!! After approx. 4.5 months I never could achieve that first 2 weeks of mental clarity and energy. NuVigil was dragging me down and interfering with my ability to think and function.

So,

I'm experimenting with my Rx drugs to see if I can still function normally w/o them. I don't take many (just 4).

Haven't taken LDN for about a week. Haven't missed it or noticed any difference.

I think Amantadine will be the next to go.

I only take 1/2 a dose (I cut my pills in half) of Citalopram (antidepressant), and may begin tapering off that in another week or two. We'll see...

The one I absolutely won't mess with is my thyroid pill. Just switched to Armour about 3 months ago. So far, so good!

Oh, and I underwent/endured an EMG to test my nerves last week. No carpal tunnel in my left arm (which is very numb). Mild CT in my right (not very numb & doesn't hurt). Go figure! *shrug* I never really thought it was carpal tunnel, but new doc wanted to make sure.

I have a date with my neuro in Dec., but not sure I'm going to keep it. Why should I? I know I'm lucky that my one and only lesion (C-spine) never seems to change. My numbness keeps progressing, but my abilities are pretty much the same as they were 5 years ago when I was dxd with MS. New neuro says NO to MS -- MAYBE transverse myelitis.

Whatever it is, I'm thankful its mild. It breaks my heart to read about the challenges of many of you dear ladies who struggle with the stuff I admit I've taken for granted: standing up and walking where I want to go w/o fear of falling; using the bathroom without worry; driving a car; keeping a job; cooking and caring for family.

I admire you for your courage in talking about these day-to-day challenges. Thank you for that -- it gives me hope and strength in knowing that if/when its MY turn, I'll be able to hang in there and make changes/adapt as needed.

Love you guys (No, not going anywhere, just haven't said it in awhile).
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LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
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