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I have M.S. and M.G., that being said, my neuro felt the M.G. was causing my swallowing to slow down since April and then stop completely in July.
I've been given 3 rescures of IVIG to bring me out of it but that didn't work. He did a emg on my face and said my face was strong, so he sent me to a MG specialist and she said it is Not a neuro muscular problem thats causing my swallowing to be so bad. Now we are back looking at the MS. He the Neuro had me go for a reg. 1.5 Mri and it didn't show any changes in 4 years so he fiqured its not the MS. He finnally spoke to his Neuro partners in the group and they said I should have a 3T MRI done because it picks up more and clearer pictures if I have lesions in the brain stem area. I'm hoping and praying this machine will give me the answer, good or bad, why I can't swallow to the point that I have had to live with a peg, feeding tube. Has anyone had a 3T MRI. I don't do well in MRI machines but the doctor order some valium for me to take before going. The Strange part of this case is that I can swallow when I go into a sleep state, other wise as soon as I'm awake I can't even swallow my saliva, very scary and annoying to have to keep spitting into a tissue so I don't choke. I'v been told by the doctor that there is the conscious swallow and there is the unconscious swallow and they are on differant parts of the brain. I could Not do the bariam swallow test, I have no signal going to my throat to swallow so it just runs down my throat and I choke. I have no gag reflex at all. I had a speech therpyist help me with Vital Stem for 3 months and there was no improvement, I just can't get a signal to my throat to swallow ![]() |
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"Thanks for this!" says: | Dejibo (02-01-2012) |
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