I broke down and committed to speaking to an "interventional radiologist" tomorrow about CCSVI. He will scan my veins and see what shape they are in, and answer questions and so forth. I have NOT made up my mind how I feel about this research, its process or its outcome.

One of the things that bugged me most was folks were clamoring to get this done, and had a wide spread of videos on the internet showing them stumbling, tripping, and unable to function well, then it went onto a functional balanced person who ran down the hall with no cane, no assistance and a dramatic change in their life. Sometimes you got one or two follow ups, but once six months went by you never heard from them again.

Even if its bad news or a redo or a failed attempt or you back slide to where you were before this thing, I would want to see it! So many said they didnt post anymore videos for fear that it would discourage folks from being tested. Well...duh! At least it was fair to tell us, instead of us assuming your life got better and you moved on and forgot us.

So...IF and that is a huge IF I choose to have this done, I promise to post a video, before, after, one month, two months and all the way thru a year, with or without progress, with or without backslides or a worse disease course.

Step one...go for the exam. Tomorrow is my day.

Say a prayer for me. its going to snow ...again! and we are driving right thru the thick of it to get there. Im so car sick now from the blindness. its gonna be so hard on me to be in the car 2 hours.