I think they call it disassociation. I have also had it. Totally normal for MS.

The way I described the floaty feeling to someone who's a non-MSer is to ask them if they've ever taken Sudafed or Actifed (before the government took the good stuff out of those cold/allergy medications because of meth-heads) If you've ever taken Sudafed and after that stuff kicks in, it makes your head feel...floaty. Like you just disconnected your head from your neck and it's floating above your shoulders.

That's exactly what that floaty "vertigo" feels like to me, altho it's a lot more disturbing than the feeling Sudafed gives me. But, it was the only way I could really describe it to a non-MSer and have them get some idea of what it felt like.

I haven't experienced anything like this for a long time, but I remember that 'disconnected' feeling well - especially in really hot weather. I recall that it felt like I had mentally 'turned inwards' and my brain was focused on getting me somewhere - I had no idea how I got from A to B - just as long as I did. I would pass people that I knew and have no awareness of them and I had tunnel vision and this strange self-protective haze around me.

I don't know if this is the same thing, but I do get what you are saying. I hope you can find some answers.

Regards

Lyn

Ummm...no, its not normal in MS and what is being decribed does not even remotely sound like dissociation. If you had experienced this I believe you would have a better understanding.

Here are 2 links that will give you an understanding of dissociation:

http://www.mayoclinic.com/health/dis...CTION=symptoms

http://psychcentral.com/lib/2008/in-...ive-disorders/

Lynn, when you stated the heat association, I totally got what's being described here.
I get that feeling just before the heat affects me...my head feels light, not connected, then the floor or ground turns sideways and I stumble.

Ugh, I can't believe the neuro doesn't get it...find a new one, Sherric!!

I can get on the bus with all of you. I have been having 3 weeks of this terrible problem. It has gotten so bad that I am in bed most of the time.

Went to Neuro Tuesday she did some tests on the nervous system and
muscles. On Feb. 13 I go for my MRI'S. The way I have been feeling I won't be surprised if she tells me the ms has become active again and that there are new lesions. Wish me well.

Jappy

I have vertigo feelings as well. Sometimes it feels as though the floor just quaked. Other times, it feels as though my brain shifted. And yet, other times its everything around me is spinning. Vertigo is such a weird thing and very different than just feeling dizzy. I don't like it much at all.

Like Lynn and Debbie, heat makes it so much worse for me.

And, yes, what you are feeling is really and validated. Hang in there and let us know how you are doing.