M.S. Fatigue and Related 'Challenges'
 

Hi Sally.Thanks for the understanding.... I'm realizing how much it means to talk to others who just get it..... Others say they do, they really think they do. they really try to, but they can't really...... Yes, I've been on copaxone injections for about 3 yrs now. I also take Provigil to just get to work most days... but it's not as effective for me as of recently.... I've had to take so many days off lately just because either I can't move or talk or I have some kind of unrelated infection, which of course takes me longer to fight due to the M.S. Right now I've been out for couple days for a surprise resperatory infection... but usually it's due to the fatigue... My cognitive issues are really getting worse. Some scary things have been happening lately. It's becoming more of a reality that I won't be able to keep this up for much longer. I'm killing myself to keep everything going.... Have you or any of the other members had to deal with quitting your beloved career to apply for medical disability? That's what I'm facing and it makes me so upset to even think about it, but it's getting closer I fear. It terrifies me to think of how to even begin.... how to support myself while waiting since I understand I can't have a paycheck when I apply, so I will have already needed to quit or be laid off... It seems almost impossible. I'm divorced. My son is in college and lives with me and is still depending on me.... What do people do about this? I'd love to hear of some stories from this group on how they deal with this.... Thanks so much. I feel so blessed that I've found this group. - Denise

Today's Dr Oz had a few things for fatigue. B12 & Iron are always a great start.

Fatigue!???

I agree that unless you have MS you have NO idea what this fatigue is.

My husband is sympathetic but still does not GET IT!!! I had to stay home from work on Friday due to just being worn out and having more symptoms. Now we have a 6 year old at home who is on School break. I told him I was not feeling well, I was tired and worn out. So on Friday morning at 5:30 am, Lexi gets up- do you think he would move??? NO!!!!! I had to get up. Then because i was home, he decided it was a good time to go do things he wanted to. While he was gone I called the Neuro, What was said, go to the ER if the symptoms do not get better or if they get worse. Relayed this to my husband, thought he would give me a break -- HELL NO!!! So this morning same thing happens. So as I get out of bed I tell him on Monday I am checking into the hospital so I can get some REST!

Do have an appointment with the Neuro on Wednesday. Due to I am dragging my feet, to much trouble to get them to lift up to walk, things seem blurry and just out of wack in my seeing and the eyes are fluttering. Arms feel like lead weights and I am just SO TIRED!! Just want to go and crawl in bed and sleep.

Maybe Monday would be a good day to enter hospital for a few days rest! Seems like that is the only place I will get it.

Geri

Geri, I don't think you will get much rest in the hospital. They delibertly wait until you've conked out to wake you up for some stupid reason.:D

How super of you to take in you GD to raise. I hope you are feeling stronger soon..:hug:

Like being rolled over by a truck...first forwards then backwards...and then parked on.

My daughter & I went on a power-shopping trip (for me). We drove to two stores: the first I did ok...then leaned on a cart; the second was in there for, maybe, 15 minutes...leaned on the cart the whole time; the third one, she went in, I stayed in the car. End of shopping trip.

I came home, she took bags in & I took a two hour nap.

:D

Yup, totally identify. We start out with 5 stops on the list. I decide I don't really need to go to the bank this week; I can order the vacuum cleaner bags from Amazon and skip stopping at Ace; I can get my drugstore items at the grocery store for a little extra $ if I'm not fussy; and we didn't really need Chinese food anyway.

Yep....I start out with great intentions and end up only completing one or two of the things I wanted to do. I know what happens when I push myself too far and I don't like it so I try to stop while I'm still feeling somewhat okay. Still working on it, though............:o.

Sally,

At our local hospital they have this really neat little unit. There are only about 6 beds and they leave you the Heck alone! Ended up there first go around. Only time they came in was when my BP dropped off the charts. Went really low, though I have low BP to begin with. I really liked that unit. Is close to all of the Testing equipment so makes things really nice for the patient. No long halls to go down for testing. I told them that is the only place I want to go to from now on.

But my luck they would stick me on a normal floor and they would bother me all day and night.

Geri

I think the fatigue is affecting me today. My legs feel like they weigh 100 pounds each. I'm okay until I do something....anything.....then I feel like I just can't take one more step. And if I try to I trip because I don't lift my feet up far enough off the floor. I know it will pass but while it's here I just feel so limited. I'm even afraid to try and take a shower. :o Don't worry, though......I can still spritz some perfume on! :p

Kell, is it rainy and humid there? I notice what I call wet fatigue, where the weight of the humidity weighs me down..:thud: