I know. I completely understand.

That is an excellent discription, Blessings.

I read somewhere that alot of MS patients run into fatigue so debilitating that they dont have the energy required to think, and sometimes talk.

Have you ever bee so fatigued that you just stopped talking? scared me so when it happened to me. I just sat back and let the world pass me by.

Hard for me to tell sometimes whether I'm too tired to talk, too tired to find the words to say, or both. I've told people "I have to get off the phone, I've got a situation to deal with" or some such thing because I just was too tired to listen, think and talk. It wasn't confusion, it was fatigue.

I was just remembering...my niece was 16 when my brother married her mom. They would come up to visit, and my niece would just sit around. No, she didn't want to go for a walk with us, she was tired. My brother said she was like that at home, never wanted to go biking with them, etc. She wasn't overweight or sickly, just never had any energy. They thought she had LTS (Lazy Teenager Syndrome). Who'd blame them?

Turns out she had Myotonic Dystrophy. She wasn't diagnosed until she had her second baby (who was born with it and nearly died). We all get some points for not KNOWING there was something "wrong" with her, but I still remember how I felt...that she wouldn't be so tired all the time if she'd just DO something, get some exercise.

I'll always remember that poor child on my sofa saying, "I'm sorry, I just can't". And how frustrated and yes, judgmental we all felt, essentially telling her she could if she'd just try.

Wow, that is so sad, blessings..

Fatigue!???

I agree that unless you have MS you have NO idea what this fatigue is.

My husband is sympathetic but still does not GET IT!!! I had to stay home from work on Friday due to just being worn out and having more symptoms. Now we have a 6 year old at home who is on School break. I told him I was not feeling well, I was tired and worn out. So on Friday morning at 5:30 am, Lexi gets up- do you think he would move??? NO!!!!! I had to get up. Then because i was home, he decided it was a good time to go do things he wanted to. While he was gone I called the Neuro, What was said, go to the ER if the symptoms do not get better or if they get worse. Relayed this to my husband, thought he would give me a break -- HELL NO!!! So this morning same thing happens. So as I get out of bed I tell him on Monday I am checking into the hospital so I can get some REST!

Do have an appointment with the Neuro on Wednesday. Due to I am dragging my feet, to much trouble to get them to lift up to walk, things seem blurry and just out of wack in my seeing and the eyes are fluttering. Arms feel like lead weights and I am just SO TIRED!! Just want to go and crawl in bed and sleep.

Maybe Monday would be a good day to enter hospital for a few days rest! Seems like that is the only place I will get it.

Geri

Geri, I don't think you will get much rest in the hospital. They delibertly wait until you've conked out to wake you up for some stupid reason.

How super of you to take in you GD to raise. I hope you are feeling stronger soon..

I am bummed because I manage about 3-4 hrs. per day of productivity. Then it's rest the day away. I am not accustomed to being this inactive. I'll be taking a lot of notes to my next dr. visit.

Thanks for being able to spout off.

Any time Somebody's Mom.