I only take them for optic nerve involvement.

I found that they are not worth the price, the risk, and they really dont do much for me. Even this last round with optic neuritis the steroids did precious little for me.

That's too bad that it didn't work for you.. it really makes me wonder though why even take it.

MHM-

It takes time for the steroids to kick in. Someone told you in one of your threads that it would "get worse before it gets better". This is the "worse." You had a hugh dose of steroids and suddenly there are none. It takes a while to start making your own again and get used to the lower amount. It's a shock to your system.

Things should get better over the next 6 weeks.
ANN

That's what I was wondering... thanks SO much for the reassurance..I'm a pretty stubborn person so I was wanting "immediate" results..

I don't do well with steroids. They make me even more fatigued, lethargic, and weak. I never get the energy bursts that people talk about.

It does take a few weeks for the full effects of the steroids to kick in. Also, I'm under the impression that getting the steroids within the first 48 hours of the attack is the most optimal. It is my understanding that after that, the steroids aren't as effective. In your case, you were having trouble for weeks and if this is true, it may be that the steroids just aren't as effective.

Also, mrsD gave some great advice. Try some V-8 or a baked potato with the skin (which has around 1,000 mg), or even canned, condensed tomato soup. These all have more potassium in them than bananas.

Hang in there, Cindy! It will get better with time.

Thanks,

This is all new to me so I'm learning as I go.. really appreciate all the advice etc.

thanks
Cindy

The very first time I had IVSM, it worked great, but not until after a couple of weeks at home.

The Neuro, who gave me this treatment while I was in the hospital, was the head of Neuro dept at hospital, and I believe that her expertise and combo of meds and treatment, led to my miraculous recovery.


She gave me IVSM, along with valium, Lioresel, Vitamin K and a 3 week taper of prednezone, to alliviate the stress of IVSM on my body. And it worked.

She retired and my next Neoro, about 3 years later, gave me IVSM for a new exacerbation....but, he didn't think all that other stuff/meds were necessary. So guess what, I was completely miserable while taking the ivsm....and it didn't work at all. (the jerk didn't know jack)