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#1 | |||
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Magnate
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Dejibo,
Devics is known as Neuromyelitis Optica (NMO). This link will explain the differences between NMO and MS: http://www.myelitis.org/nmo.htm http://www.guthyjacksonfoundation.or...-need-to-know/ There is a blood test for NMO that your neuro can order...Antibody NMO-IgG. This is done through the Mayo Clinic. BTW: I have had the blood test.
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Dx RRMS 1984 |
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#2 | |||
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Magnate
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Clarification: The blood work is sent to the Mayo Clinic. You do not need to go to the Mayo Clinic.
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Dx RRMS 1984 |
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"Thanks for this!" says: | Dejibo (02-25-2012) |
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#3 | |||
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Elder
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I followed the link over to the TM message board, which includes great information about Devics disease. Its slow reading but its fascinating to research it.
They spoke of how at least 1/4 of patients have some other underlying disease like lyme, lupus sjoghrens (which I have) or other things. I hate this disease. Have I said that lately? I really hate this. I just want to wake up and find out it was all a bad dream.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: |
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#4 | |||
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Magnate
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Dejibo,
I am glad you have found the links helpful. If you are concerned about NMO ask for the bloodtest and ask questions on the message boards from the links. There are some informative people on there who could offer you some advice and information.
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Dx RRMS 1984 |
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"Thanks for this!" says: | SallyC (02-26-2012) |
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#5 | |||
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Elder
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Wow Deb that would be so strange after all of this time if you'd definitely have a different dx...I remember many times you questioning your MS dx...hugs & I sure hope you get some answers real soon.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | Dejibo (02-29-2012) |
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#6 | |||
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Elder
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The neuro on the phone said YOU HAVE MS! I keep telling you this and i know you still dont want to believe it, but trust me, you have MS. ON is just part of it.
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__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Debbie D (02-29-2012) |
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#7 | |||
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Elder
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I recall a mystery diagnosis show once where a woman had MS symptoms...turned out to be Devic's.
Just hope you get better soon, hon ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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