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Old 02-24-2012, 11:01 AM #1
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Default Personal but important

For many months I have been having problems with bowel urgency. I had little warning of having "to go" and could not hold it when I felt the urge. I figured it was an MS thing and I had to learn to live with it.

One day I had a break in my work so I looked up all my meds on medline to see if anything was new. Low and behold, copaxone listed fecal urgency as one of the side effects. I talked to my doctor and we decided that I would stop the injections and see what happened. My problem went away. Now I have the ordeal of finding an alternate therapy but I can feel comfortable leaving home and I don't need to know where all the bathrooms are wherever I am. It has made a huge difference in my life.
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Old 02-24-2012, 11:05 AM #2
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This is such good news for you and good info for the board! I'm glad that you investigated and educated you doc.

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Old 02-24-2012, 11:20 AM #3
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Good info. to know.
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Old 02-24-2012, 12:04 PM #4
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Good news. Was Copaxone keeping your MS at bay? I hope you will find a med that will do that for you.
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Old 02-24-2012, 12:39 PM #5
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another prime example of being you being your own best advocate.
thanks for the info.
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Old 02-24-2012, 12:48 PM #6
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Yes, Sal, the copaxone was keeping my symptoms well under control. I'm a little afraid of what will happen not taking it. My PCP says she will refer me to an MS specialist so I will probably have to go to Rochester. I'm a little afraid of breaking in a new doc. They repeat the same old tests that show the same thing year after year. I'm tired of the process. We'll see what happens.
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Old 02-25-2012, 08:43 AM #7
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im so glad you found the answer! congratulations!
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Old 02-25-2012, 10:45 AM #8
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The bowel urgency problem was the main reason I stopped taking Copaxone.

I tried to tell the neuro I thought that the bowel problems I was having were connected with the Copaxone, but he dismissed the idea. Like you, knittenkitten, I looked it up and found that bowel urgency is listed as a side effect that they had noted.

The whole problem got much better after I stopped Copaxone.
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Old 02-26-2012, 12:28 AM #9
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Hmmmmm, interesting. Bowel urgency with Copax eh? Who'dathunk it?
Ticked that box... But also stopped drinking lactose milk and dah dahhh! No more issues for me!
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Old 02-26-2012, 02:50 PM #10
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Good for you but what causes mine? I'm not on Copaxone
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