Functional Systems

I am not even going to think about this list. I am fine...except for the tightness and pain, and walking like my 90 yr old FIL...

If I started looking at this thing for myself I would sit and cry. Im sorry you got such a high rating.

Since I've had it so long (SX @ 24 - DX @ 35 - now 71), I was trying to guide myself along the chart to see how I progressed.

For the first 11 years I was prob. a 1.5
After DX and the next 16 yrs prob. a 2.5/3
After 2nd DX-the next 9 yrs prob. a 4.5/5
From age 60 to now 11 yrs prob. a 6 to a 7.

NOT going any higher..

Back in about 2005, I had a neuro rate me at a 6.5 when I was really bad and could hardly walk with a cane. That was when they wanted me to use a rollator. Now, I would say I'm a 4.5 some days and a 5 or 5.5 other days. It just varies so much.

My current neuro never gives out an EDSS.

Some where between 6.5 and 8, bits and piece of all of them fit. I can still walk with a cane, that`s what I call it and I am sticking to it! 20 meters without resting? I wouldn`t bet on that!

I can`t use a regular wheelchair, my left arm isn`t pushing anything! I go in circles! I can take care of myself, but I don`t do anything for 12 hours except sleep at times!

I can still drive, get myself in and out of my van ok, I have a problem trying to climb out of small cars. I wouldn`t even think about trying to walk around a store, even holding on to a cart for support.