I would most definitely love to read more on this..

Ever since I was diagnosed I have a very hard time staying awake, almost like narcolepsy.. I fall asleep sitting straight up, I even fell asleep while painting the other day..

I had assumed its just the MS fatigue...

When I was first diagnosed I was shooting straight out of my sleep feeling like I was dying. Scares the crap out of my boyfriend. I still do it to this day.. Sometimes it happens more than once in a night, making going back to sleep very scary.

I also have had the hard jerk of my right leg and right arm while sleeping.

My doctor thought I had sleep apnea and thats why I was waking out of my sleep so abruptly, but I went for a sleep study and they determined its not sleep apnea, so when I asked what it was, there was no answer for me...
I hate doing it, it scares me, I feel like its taking years off of my life

If you have a link on where I could find more info on this I would GREATLY appreciate it

Trevis Gleason had an entry about it on his blog. Either google him or "everyday health/ms".
I still believe he's got something with this theory. It happens just as you described it for me also...it's scary.
I can't keep my eyelids open, even though I'm not tired...they just want to clamp shut. Then I'm gone until I suddenly awaken. Too weird...