Hiya RedPenguins! I remember you and your darling avatar! And that you were on HiCy twice.

Nice that you had remission, but sorry its over.

I don't know much about Rebif -- does it have bad side effects for everyone?

I hadn't heard of Ocre, but am interested in finding out how it affects you (assuming that is the one you get).

Keep us posted. And good luck with that 15 month old!

Hi Red! you were so inspiring to me and I never got to thank you.

I didnt do Rebif, but did Beta and I never had a blink of depression. I was on it about 3 months when I had to stop due to liver enzymes soaring, but not a hiccup.

I hope you feel better.

Hi Red!! Sure I remember you!! I hope that whatever treatment you're getting it helps you...sorry Copaxone didn't work well for you. I look like the moon I have so many craters from it

Keep us up to date occasionally...hope the baby's doing well!!

((((Keri)))) ...I've been thinking about you lately and wondering how you are doing and if you were still in remission. The HiCy was good for you for a long time.

I hate to hear that you are back on the DMD Merry-go-round. I'm off of them. It sounds like you're trialing another Tysabri-like med, so be careful of the JC virus...

Let us know how it's going for you. Any chance of another HiCy treatment?

Sally, I can't do HiCy again....i've reached the lifetime max. As for JC - they did the test on me to see if I'm at risk... Also, with this med, it's been used in treatment for RA, lupus and MS with astonishing results...and no one with ms has developed JC or anything else. SO that is hopeful.

They dosed me today with 1/2 of the first dose. I go back in 2 weeks for second half. then not again for 6 months.... I developed a low grade fever about 30 mins into the infusion - which is a known side effect for the med....and if it was just saline in the bag, that would not have happened. so we were optimistic. I also shot myself up with the "Rebif" after the infusion. i had no reaction, tho i dont think rebif has site reactions like copaxone? But i dunno.


Deji - - I thought of you often - b/c when I was last here regularly, you were really struggling with your health. it sounds like you are doing better - and i'm glad to hear that!!!

And my 15mo old is awesome. i missed her terribly while i was away and she was already asleep when i got home tonight. i havent seen her since tues morning. my heart aches!!

~Keri