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Old 03-11-2012, 07:12 PM #1
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eeyore2 eeyore2 is offline
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Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
eeyore2 eeyore2 is offline
Junior Member
eeyore2's Avatar
 
Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
Crazy After all these years--still on the diagnosis merry go round

...it is extremely frustrating. After ~2 years of doing relatively well, I've started having sensory ("numbness") problems in my left arm and leg, long with mild bladder leakage (and having to push on my abdomen to get out what is in there when I try to go)...
so, they are saying MS again...

I've been diagnosed with conversion disorder then MS, then MG, then psych again, then they found a cervical disc compressing my spinal cord (with improvement, but not resolution of my problems), then MS, then MG, then definitely NOT MS or MG, then residual cord compression with unknown etiology of chronic aspiration and depression

while things were stable I could "ignore" everything (I use crutches/ wheelchair for longer distances) and I've not seen my useless neuro's for ~2yrs

Now I have to go find one again (my family doc thinks its MS--my prior spinal tap was negative and I have few scatttered small brain lesions)

I don't care what they call it--I just don't like getting worse

Anyone else been undiagnosed for >10years?
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