I go to my MD and he sees shrunken, atrophied optic nerves. into the hospital I go. By the time I get an appointment with the eye surgeon my optic nerves look beautiful, but I still cant see well. She looks at me like I have a horn growing out of my head. Speak to the MS team and they say "oh what you are going thru is normal" speak to my MD who says "I dont see what they see" UGH! Then all the meds they had me on really messed up my tummy, and the GI says "no wonder! stop taking that!" and the MS team says "dont you dare get off that med!" OMG! im a rag doll being pulled in different directions!

Im sorry you continue to be on the rollar coaster. Hang in there.

You all on this board are pretty much experienced experts, but years have gone by and I have found no one like me, a particular kind of elephant. PPMS is it's own kind of animal but I've never found a PPMSer like me though! By default I'm the only expert on the Kickerbeast around. (and it's not like I really fully get it either)

It must be so frustrating for you..