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#1 | |||
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Elder
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Back a year or two ago there was talk about a study or studies either being done or having been done concerning taking Copaxone on a less than daily basis. Some were saying every other day, some three or four times a week, etc.
Has anyone heard any updates on that? I've only found reports from people who had put themselves on a schedule without input from their neurologists. I've been on a "break" from Copaxone for a few months. I was having severe anxiety symptoms which coincidentally (?) went away when I stopped taking the shots for a while. I've tried twice to start up again. I keep wondering if gradually re-introducing it would make a difference, or if I'm daydreaming.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#2 | |||
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Member
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Hi B2Y
I really don't know - is some better than none??? Whichever way it goes, I hope you find something that helps you. Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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"Thanks for this!" says: | Blessings2You (03-19-2012) |
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#3 | |||
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Elder
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I did it every other day for about a month, and then realized...I just dont want to do this anymore, and laid down my needles. I felt dramatically better. The MD was mad, and has been trying hard to get me to go back on the meds, but....I feel so much better off them...im not going back.
I hope you feel better. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Blessings2You (03-19-2012), Kitty (03-19-2012) |
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#4 | |||
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Wisest Elder Ever
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I really wish these M.D.'s would realize the same med is not going to work the same in everyone. Just because it made miraculous improvements in one person doesn't mean it will in all of us. If that were the case why is there more than one DMD on the market? If you feel better without it I believe your body is trying to tell you something.
I've started listening to my own body and feel tons better for it. Makes the doctor mad but he's not the one with MS! ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: |
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#5 | ||
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n/a
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I have been on C eod for quite some time now. thankfully stable.
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"Thanks for this!" says: | SallyC (03-19-2012) |
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#6 | |||
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Elder
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Maybe I'll call Shared Solutions and see what they say about every other day.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#7 | |||
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Wisest Elder Ever
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They'll tell you to take it every day. It's more profitable for them if you use it all up each month.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | ANNagain (04-07-2012) |
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#8 | |||
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Elder
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Good point.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#9 | |||
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Grand Magnate
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i wonder if these reactions are actually a form of sensitivity or allergy.
you can be on a med and tolerate it fine, then develop an allergy, even tho it's more common for the allergy to happen right away. ummmm?
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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