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#1 | |||
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Grand Magnate
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Had an appointment at Barnes Hospital today. They are recommending that I try copaxone again. I had 5 IPIR's in the 4 1/2 months I was on it, but since interferons and tysabri are out ( allergic reactions, antibodies), she wants me to try it again. She also recommended I manually inject. So hopefully with the smaller needles and by manually injecting I may have less reactions. I have 2 or 3 new lesions in the past year so there is some progression. On a more positive note, she still thinks that my MS is relatively mild based on number and size of lesions and the fact that I did well during the physical exam.
If this does not work, she mentioned imuran as the next step. However, she also believes there will oral meds for ms in the "near" future. |
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#2 | |||
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Magnate
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I hope it works for you this time barb.
I've never experienced an IPIR... and I manually inject. Hrm. Though, if that's the reason for IPIRs (autoinjector) that would surprise me. PS I'm jealous you have the 29 gauge needles! Still have crappy 27's here. ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#3 | ||
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Junior Member
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Good luck wiyh the switch and watch out for veins, I think that's why it happens. It is good that you are taking measures to slow your MS. Copax has been working for me, so far as anyone can tell but I'm looking forward to the release of Frampridine for improved mobility and some kind of oral or non interferon once a week or so med or a cure(?) Stay the course and be well.
Oh yeah, the smaller needles seem to lessen the site reactions. |
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#4 | |||
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Magnate
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Quote:
I make sure to dodge any dark lines when I'm doing my injections. ![]()
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#5 | |||
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Magnate
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hey Barb ... C-shooter here ... but, autoject2 ... or I'd pass out everyday!!
know that I'm here for ya too ... HUGS!!
__________________
Vonn RRMS - April 2007 It takes only a single idea,
a single action to move the world! The Power of One! |
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"Thanks for this!" says: | barb02 (01-08-2009) |
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#6 | |||
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Elder
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Barb, thanks for sharing your exam results. Hope that Copaxone shows some lessening of lesion production for you.
I'm still having trouble with huge welts where I shoot, esp the thighs. I need to call Shared Solutions about it, since it hasn't lessened after one month. How do you know how far in to put the needle when you inject manually?
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#7 | ||
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Member
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Good luck,Barb. I hope Copaxone works well for you this time. In my experience on it, I agree with Bombi, the IPIR's seemed to happen after hitting a vein. In over 9 years on it I've had maybe 10 IPIR's and each one seemed to be after I bled pretty much after an injection and had hit a vein.
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#8 | |||
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Grand Magnate
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Good luck, Barb. I hope it works for you this time.
![]() Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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