advertisement
Reply
 
Thread Tools Display Modes
Old 05-06-2012, 10:22 PM #1
new2net98's Avatar
new2net98 new2net98 is offline
Member
 
Join Date: Jan 2012
Location: Yooperland...somehow we all live in peace up here.
Posts: 171
10 yr Member
new2net98 new2net98 is offline
Member
new2net98's Avatar
 
Join Date: Jan 2012
Location: Yooperland...somehow we all live in peace up here.
Posts: 171
10 yr Member
Default Having trouble swallowing still

Doctor recommended liquid thickener. The only stuff on the internet is cost prohibitive. I was wondering if plain old Knox plain geletin powder (spelling?) would also do the same thing?

ThickIt just doesn't sound appealing. We had some Guar Gum in the house from doing Adkin's Diet a few years ago. A little worked...but it's got a floury taste in things like tea. Can't even think to use it in coffee; it would be sacriligious.

I have had to give up popcorn, granola bars, rice crispies & G*d only knows how much...do I have to give up everything?

So sorry for the Whine...lol...it crreeps into everything!
__________________
It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers.
.
new2net98 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (05-07-2012), SallyC (05-07-2012)

advertisement
Old 05-06-2012, 10:54 PM #2
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default

Well, Ive had thickit before. Plus' for it are no taste and it can come in powder or liquid. I prefer the liquid, no chance of not dissolving all the powder.
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (05-07-2012), new2net98 (05-09-2012)
Old 05-07-2012, 09:58 AM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

I don't see any reason why you couldn't use instant jello powder. Maybe corn starch for soups/ hot foods?
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (05-07-2012), new2net98 (05-09-2012)
Old 05-07-2012, 03:30 PM #4
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

Did the docs give you any swallowing therapy? When I had swallowing test, I performed well (of course-I never seem to have sxs when I'm at a doc's or having a test).
But they did tell me to bend my head down when swallowing...also to use warm water when taking pills, since cold water increases choking in some.

Hope you find something to help you
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
new2net98 (05-09-2012)
Old 05-09-2012, 10:45 AM #5
new2net98's Avatar
new2net98 new2net98 is offline
Member
 
Join Date: Jan 2012
Location: Yooperland...somehow we all live in peace up here.
Posts: 171
10 yr Member
new2net98 new2net98 is offline
Member
new2net98's Avatar
 
Join Date: Jan 2012
Location: Yooperland...somehow we all live in peace up here.
Posts: 171
10 yr Member
Default

Quote:
Originally Posted by Debbie D View Post
Did the docs give you any swallowing therapy? When I had swallowing test, I performed well (of course-I never seem to have sxs when I'm at a doc's or having a test).
But they did tell me to bend my head down when swallowing...also to use warm water when taking pills, since cold water increases choking in some.

Hope you find something to help you

Thanks again!!


Since have to go for yet another MRI this month; I've decided against the swallow test...can't afford it until or when our Refi is completed. Med bills are sky high now; even with insurance.

I have been researching & getting valuable tips from all of you...started taking pills with applesauce. Got some cute little individual pouches of the stuff...G*d bless kiddie-cutesy lunch snack paks...that make it super easy. Drinks are easier to drink during the day...and murder to choke at night. Mild allergies make it worse. Been experimenting with lots of stuff found on the internet; like the warm water trick (makes me nauceous) and the head tipping (I lose my balance on the way up). Doesn't happen often enough yet; but I am an intrepid soul...must have answers before...LOL

Oiy...
__________________
It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers.
.
new2net98 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (05-09-2012), SallyC (05-09-2012)
Old 05-10-2012, 11:03 AM #6
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i had a swallowing test too. the therapist gave me some exercises, most of which i don't remember.

but, i've found that i need to have a liquid at the table when i eat for when food gets "stuck". i also found that if i tilt my head a bit forward i swallow better. when my head goes back i can choke.

i wonder if talking to a registered dietician might help to give you some food tips. i'd be interested to know what you find out.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
new2net98 (05-12-2012), SallyC (05-10-2012)
Old 05-10-2012, 01:19 PM #7
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

I have a hard time swallowing too. In fact, I just had a EGD where one of the things the dr found was esophageal motility disorder. I don't know the cause of it (MS vs. the other things he found, I'll find out at the end of the month at my follow up visit). What I am finding that works for me is smoothies and lots of soft foods. My mom gave me a great recipe for a good healthy smoothie and I've been having lots of those. I mix different things in the basic recipe so I get some variety. PM me if you want the basic recipe. I do have to water it down a bit as it can bee too thick and then I have trouble swallowing it. Too thin and it just sits in my throat.

I think the gelatin would be fine, plus it has some protein in it as well, which I don't know of ThickIt has in it. I've been eating a lot of Jello too.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
new2net98 (05-12-2012), SallyC (05-10-2012)
Reply

Tags
choking, coughing, thickener, thickit


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Swallowing? Neofate Myasthenia Gravis 4 04-20-2012 02:09 PM
trouble swallowing (please describe?) Stellatum Myasthenia Gravis 12 05-23-2010 10:29 AM
Swallowing speterson Myasthenia Gravis 7 02-26-2010 12:57 PM
Trouble Swallowing after Ventillator sues18 Neuromuscular 3 11-13-2009 01:56 PM
Swallowing..... frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 11 02-20-2007 01:52 PM


All times are GMT -5. The time now is 02:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.