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#1 | |||
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Grand Magnate
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Don't bother listening to so many others. Waiting for my MRIs results I was convinced it was a brain tumor. The years proceeding my DX, doctors and others said they didn't know what it was, but it wasn't MS. My PCP unhappily sent me to a Neurolgical Opthalmologist who looked so serious at me, said he had no idea, could not help me but he could do magic tricks for me and did. (I was cute back then and a captive audience for that frustrated magician-wanna-be.). My PCP then sent me to a neurologist and made me promise her after that I'd stop looking for answers. He DXed MS. No numbness or tingling, I walked funny and always had to pee. My LP and MRI were classic MS. I'm PPMS and firmly convinced in my DX. 10 years after DX I am in a wheelchair but never spasm or tingle or have numbness. I have found many doctors and others in medical community are very unfamiliar with MS and not worthy of listening to. My D and B levels show fine. Everyone's MS or ? is different.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#2 | |||
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Grand Magnate
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The women at work sound like total b******. If I could curse them then I would. A pox on them then.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#3 | |||
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Member
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I would suggest finding new docs. You need a doc that is part of a team and would rather say I can't give you a definite answer but refers you to someone who can or at least someone who can point you in the right direction. I've gotten very lucky with most of my docs. I have never had a problem with anyone she has referred me to.
Good luck and I hope it is not MS but you get correct answers so your issues can be addressed. |
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#4 | |||
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Member
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Wow!
No wonder you are so scared - I can't believe that your chiropractor has made this call. I also can't believe that the girls you work with are that nasty. Others here have given you great advice, Kicker has called the gods to smite those who are being so mean ![]() So....take a deep breath...this is a great place for friendship, support and information. If you do end up with MS - life will go on. Some things will be different, but there are many worse things that you could have, and there are amazing strides being made all the time across so many medical frontiers. Please take care, and take heart - you are not alone, so keep us posted. Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#5 | |||
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Member
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I agree your current doctors are IDIOTS.
I went to my Chiropractor when I started going numb down my right side. He would not even touch me until I saw a Neurologist. That was a good call. Your doc is a fool. ![]() Don't be scared and read my notation at the bottom of my screen.....it is very true!
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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"Thanks for this!" says: | SallyC (05-09-2012) |
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#6 | |||
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Grand Magnate
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jenn,
welcome to NT. take a breath. i do have MS and the best advice i could give you is to take things one day at a time. just deal with what's in front of you and let the rest go. your chiro was acting unprofessionally to guess at a diagnosis. as to your other dr, anyone that brushes you off and doesn't listen to you doesn't deserve to be on your medical team. search out drs that try to validate you and help, and to allay fears. and i agree about not listening to other's opinions and stories. it's common for people to share stories and make suggestions. all of which may just frighten you. and think twice about sharing such personal medical information in your work environment. IF anything is wrong you may not want that info out there. we're a good source of support and info. i hope your neuro appt goes well. try to bring a friend or family member with you for another set of ears. if not write down what the dr says. that will help you remember when you get home. hope to hear more about how you are.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#7 | |||
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Elder
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Welcome to NT...lots of info, support, laughs and hugs here...
I'd ditto the above advice. It took many of us YEARS to get an answer to all of our strange symptoms. As noted above, write symptoms down with dates of onset and dissipation. Also, write down questions you have for any docs you see. And write down their answers. Many of us forget what to ask or what's said in the exam room. Don't listen to your "friends"...listen to your gut. Try to be patient...and always try to find good doctors. You have to be your own advocate...don't be afraid to confront docs with your doubts!! Keep us informed about what's going on... ![]()
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#8 | |||
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Grand Magnate
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Being sick with something is like being pregnant. Everyone has a terrible story about labor or something related to tell you,
Bette Davis said old age ain't for sissies. Neither is being sick. Stand tough.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#9 | ||
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Member
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I have numb feet, from peripheral neuropathy. PN can come from MS, from diabetes, from Polycythemia Vera, from a stroke, from Shingles....many causes. As others said, an MS dx usually comes slowly. In my case I got an MS dx, then a Porphyria dx, and much more recently a Polycythemia Vera dx (in PV, too high numbers of platelets and red cells). So I have three things at least which can cause numb feet. I didn't get the numb feet as my first symptom, however. I had other things, weak hands, the fast pulse, the dizziness, meandering walk, etc. My symptoms at dx were eye trouble, which is usually easier to fit into an MS diagnosis.
I won't add any more comments to those already given on the inadequacies of the medical people and the work-mates. But perhaps it wasn't too vile of the chiro to ask you to look for MS? He shouldn't have said outright that you have it, however. |
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"Thanks for this!" says: | SallyC (05-10-2012) |
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#10 | ||
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New Member
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Thank you everyone for your support. I cannot tell you how much it means to me. I went and had an MRI done on Thursday - my neurologist scheduled it but I don't visit him for 2 weeks to get the results. But I have the images on a CD. Could someone please tell me if you can read the pictures?
I am not sure if I have a herniated disk or not. What if it is? Can it be fixed? I had an anxiety attack last night when i was out with my friends. I couldn't breathe and started sobbing hysterically. It was embarrassing. ** Last edited by Chemar; 05-12-2012 at 01:11 PM. Reason: ** NT guidelines linking for new members |
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"Thanks for this!" says: | ANNagain (05-14-2012), dmplaura (05-12-2012), NurseNancy (05-16-2012), SallyC (05-12-2012), tkrik (05-14-2012) |
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