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Old 05-12-2012, 09:24 PM #1
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dmplaura dmplaura is offline
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Quote:
Originally Posted by new2net98 View Post
Oh, my, thanks for posting this....my company (not necessarily my direct boss) has said that they can't really do anything for a medical condition, as long as I am continuing to try to get help or be tested; but, I wonder, if money issues prevent me from getting that dx (from the neurologist), can I be fired for issues beyond my control? It's like walking a tightrope sometimes.
It depends on a number of factors to be honest... what type of pay (hourly, salary, commission), State laws, country of residence, type of work, demand of job, how your job can accommodate, etc etc etc.

There's a number of things to 'factor in'. This is why I was so utterly confused.

In my case, I had already been diagnosed with MS. I had already disclosed my diagnosis to my employer as of March 5, 2008 (been employed with them since November 2001). They have both short term and long term disability through a third party insurance company. I'm a salaried worker (full time hours, 37.5 hours weekly).

So with my MS diagnosis, to get a workplace accommodation - permanent, or a change to current workplace duties or expectations of current role - I need to complete an Employee Declaration and send that to my insurance company (which I did on Friday by fax). Then I wait for them to call me back with a case number, and details. From there, I BELIEVE my doctor's office fills out their info, but what I did on my side was authorize the insurance company to go to my GP/family doctor and request as much/any medical info they wanted on me to provide for work accommodation to my employer.

I'd get in touch with your HR group for further clarification, or insurance group (if applicable), however it seems (where you say your company has said) that you've already been in touch?... what is it that they won't support in you trying to get answers/diagnosis? My insurance company supported me through short and long term disability, reporting to my employer, throughout the 'limbo' period and then up to my return to work full time after diagnosis, as well as relapses, etc.

I really hope you're able to get some help in this, it's the absolute PITS when we just want to be productive members of society within our capacity and not do ourselves in in the process.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 05-13-2012, 07:12 PM #2
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I'm one of those that forgets to pay bills! I have so many cognitive problems that when I went before the Judge for my disability and he asked me a question about "our profession" (his words) (I was a Paralegal) whatever I said made him just stop and stare at me. I never did figure out what I said! Whatever it was proved to him that I could no longer work. And back then I was doing pretty well but now I'm so much worse.

I now have all my bills paid automatically but still have a list of when the bills are due which I check off each month. I have a large desk calendar where I write everything down and I mean everything. Especially if I need to pick my DD up from somewhere. So far I haven't forgotten her so I'm doing okay. I have a list of cleaning I need to do and mark it off when done.

I make sure to tell people when I first meet them that I have MS and many cognitive problems so they'll understand. This way when I say the wrong word(s) I can say I warned you! To look at me you'd never know I had MS and I've had it for a long time.

The funny side is when I say the wrong words it's halarious - after all if you laugh at yourself, it much more fun!

The sad side is when I forget to make dinner. Oops, sorry family. Guess that's what frozen quick prepare meals are for.

The awful side is some family members have said nasty things about my cognitive problems.
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Old 05-13-2012, 08:30 PM #3
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Karousel, some of the drugs we take make it even harder to think. I am taking few now,
but when I first had an MS dx I was tried on several things which made it even harder to do things. Baclofen made me run into walls, as I didn't have enough eye/body coordination to sense the walls approaching. Several anti-depressants made me more depressed because they slowed almost all functions, as well as increasing spasticity. I take tiny amounts of Klonopin and Propanalol, and these do not slow me much, or interfere much with thinking.
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Old 05-13-2012, 10:06 PM #4
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Quote:
Originally Posted by Mariel View Post
Karousel, some of the drugs we take make it even harder to think. I am taking few now,
but when I first had an MS dx I was tried on several things which made it even harder to do things. Baclofen made me run into walls, as I didn't have enough eye/body coordination to sense the walls approaching. Several anti-depressants made me more depressed because they slowed almost all functions, as well as increasing spasticity. I take tiny amounts of Klonopin and Propanalol, and these do not slow me much, or interfere much with thinking.
I just started Topiramate. I am a space cadet now. This is on top of long term, low dose clonazepam (klonopin) and the real doo dee doo medication, nabilone (which I've been taking for quite a while now as well to control my pain so I can at least work).

The medication + the disease progression into cognitive disruption is quite a cocktail.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 05-15-2012, 01:19 PM #5
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Quote:
Originally Posted by Mariel View Post
Karousel, some of the drugs we take make it even harder to think.
Uh oh, I'm on very few meds - Avonex, Notriptyline, Vesicare - so I'm really in for it if/when I need more meds. I have been on these meds forever, even before my cognitive started getting worse. But of course if more meds mean more cog fog, at that point I may not even care.

It just nice to know I'm not alone in my daily struggles.
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