There are "silent" lesions that do damage, but dont show up on the machine. Now, whether that is that the machine isnt strong enough to see them yet, or technology hasnt advanced far enough to really get a good look, who knows. I am dealing with some silent damage right now.

I hate this disease!

yes it was...i have one every other year. i don't get sedated. when i am having mri, i imagine myself somewhere and really focus on a peaceful setting. my sister hates them, and i told her to try what i do, she recently had one and stated it really helped her.

I have had a brainstem lesion since 1997. It isn't active right now. I have been on Avonex since 97.

when i look down, either when standing or sitting, I get a buzz down my back especially in lower back. I know that I have herniated discs in my lower back, but can this be from a possible lesion. I do have a bulging disc in my neck, but the doctors were not concerned about it.

I believe that's L'Hermittes. I get a strange sensation in my left leg whenever I look down. If I happen to be standing or walking it can almost trip me up because my leg turns to jello. I used to get the buzzing feeling in my neck and spine but it's changed to the left leg sensation only now. I do believe it's from a well-positioned lesion.

Yes that sounds like L'Hermittes and is very common with MS. It feels like an electrical jolt going down the back of your neck and spine.

We're here with you brmr19..

thats what I thought, I have gone 7yrs with really not to much as far as symptoms and this past year as been tough. It started out april 2011 with feeling like I was going to pass out. Turned out to be thoracic outlet syndrome with arterial compression. The subclavian artery was being pinched on my left side but when it was compressed, my vertebral artery would stop flowing. I had one surgery on left side which helped some. I have another scheduled in july for further repair on left side and then will need the right side done because of the same. During this time, my neurologist believes I my have a lesion on the brain stem that just did not show on the mri. This new symptom started several months ago. I have not worked since april of 2011 and still waiting on disability through my pension system. What a year, I go from very active working over 60hrs a week to not being able to do much. I have limited use of my arms due to the thoracic outlet syndrome. I am trying to stay positive the best I can, since I have always been a very positive person. Thanks for the support.