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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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NurseNancy, I was on beta 10yrs ago for about 9 months and I was having reactions to it, so I stopped and hadnt been on any other meds until 3 months ago when I started copaxone. I have been lucky, in that I havent had bad flares or anything during these 20yrs, that is until this past October and December. I now know the pain that goes along with this disease. Ive been on baclofen and amitriptyline since December. I did 4 weeks of steroids and I had a bad reaction to it. I told my neuro that I will not be doing ivsm anymore. He's not happy, but understood and then he suggested acthar gel and Im still apprehensive. I can't do an MRI right now, because I have no insurance. I lost it when I lost my job in December. Im on ssdi but dont qualify for medicare and medicaid for 2 years. NMSS will not pay for a mri because Im already dx, that is per the NMSS, I looked into it.
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